My numbers have been great. With the new insertion sets, my BG average is slowly coming back to normal. But now I'm faced with something completely different.

I'm exhausted. I have a whole load of symptoms, but mainly I'm exhausted. I'm falling asleep every couple hours. The doctor is kind of baffled. They drew blood (four times!) on Tuesday, and their main concern is with my kidneys. I've had protein in my urine for a few years before I was diagnosed. We used to see a kidney specialist. He told me I had a condition where my kidney just leaks protein. Because I didn't have any other conditions, I was off the hook.

And then diabetes had to enter my life. We sort of forgot about my kidney stuff for a while. And now we're starting there again. The blood results, which aren't in yet, are going to my endo at Children's so they can work with a kidney person at Children's also. In the meantime, I'm doing "homebound instruction" from school. It sounds like home arrest.

I know protein in urine can happen when you've had poorly managed diabetes for years. But I've had diabetes for a year. And my a1c is 6.9! I don't know what to think. And until the results come back with a game plan, I'm stuck on home arrest and naps every two hours.

On another note, I looked under my bed last night. I have a loft-like bed with a crawl space underneath. What a disaster! There was an endless amount of test strips from midnight and 2am testing. Two or three pump tubes and insulin reservoirs (new- I think the cats stole them!) A numerous supply of empty test strip bottles. 5 empty juice boxes and 2 tubes of glucose tabs. Not to mention, quite a few unmatched socks and maybe 10 long lost books.
All of this is because the back of my bed is a ledge where I store juice, tabs, my meter and anything else I might need in the middle of the night. Oh, and the bell (I worry that I'll be low and unable to talk, so the bell is there if, as my mom says, "I don't have something to throw at the door, such as a lamp." Although the cats have taken a liking to hitting the bell, which I then have to explain to my parents when they come over, juice in hand.).

Before we settled with the Sure-T infusion sets (after a month or two of broken quick sets), we tried the Silhouette.

The needle was realllllly long. Scary long. I wasn't about to attempt it, so it was up to my mom, who was also nervous.
We prepared it and prepped my skin.
Mom- murmering "Glide...glide....glide..." (this is what the educator kept saying to us when explaining them)
Sloane- "umm.. I'm really scared."
Mom- "Well I am, too!!"
Then we attempted insertion.
Sloane- (it was really painful and felt much longer than it looked, which was very long) "You just hit my LIVER!"

It worked, but we just went back to the Sure-T which takes 3 seconds to insert, which I can do myself and I don't even feel.

It should be a really hectic week coming up, test results, attempting going to orchestra because it's mandatory, and so much more.

Views: 4

Comment by Kristin on January 31, 2010 at 9:48am
Hi Sloane! Sorry to hear about all these tests. Hope that they are able to get to the bottom of this.

Just a thought to make sure that they test your thyroid too while they are doing all these blood tests. Hypothyroidism is a condition that is really common with type 1 diabetes and it can make you REALLY tired.

Keep us posted on how you are doing!!

Do you miss school?
Comment by FatCatAnna on February 4, 2010 at 9:02am
I think my Mum should be relieved that when I was your age we didn't have all the gizmo's that we now use for keeping our D life in balance. My Mum is a clean freak - and to discover the "stash" under my bed like yours - she would have FREAKED. I mean she freaked out the time I let my gerbil out for a "stroll" around my bedroom - where upon Flopsie discovered a hole in the mattress - and proceeded to get lost in it (my Mum hates things with tails - I was lucky to get a pet as kid ). Anyway, so glad you like the Sure-T's - aren't they easy to put in/out - and no LONG needle. So, hang in there, and hope things are back to normal soon for you as I'm sure you are missing friends at school, etc. (hope they come by after school to see you, etc.).

Comment

You need to be a member of Diabetes community by Diabetes Hands Foundation: TuDiabetes to add comments!

Join Diabetes community by Diabetes Hands Foundation: TuDiabetes

Advertisement



REsources

From the Diabetes Hands Foundation blog...

Congratulations Diabetes Advocates Scholarship Recipients!

The Diabetes Hands Foundation and Diabetes Advocates Program is proud to announce and congratulate the members of DA who were granted scholarships to attend diabetes conferences in 2013! Thanks to a generous grant from Novo Nordisk, in 2013 we were …
Continue Reading

La Familia de EsTuDiabetes Sigue Creciendo

El Centro Nacional de Prevención de Enfermedades Crónicas y Promoción de la Salud en el Estados Unidos encontró que a partir de 2002-2009, el 11,8% de los hispanos mayores de 20 años, que viven en los EU, viven con diabetes …
Continue Reading

TuDiabetes Team

DHF STAFF

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Emily Walton
(Business Manager)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Heather Gabel
(Administrative and Programs Assistant, has type 1)

DHF VOLUNTEERS


Lead Administrator
Bradford (has type 1)

Administrators
Lorraine (mother of type 1)
Marie B (has type 1)

Teena (has type 2)

Brian (bsc) (has type 2)

jrtpup (has type 1)

 

LIKE us on Facebook

Spread the word

Loading…

This website is certified by Health On the Net Foundation. Click to verify. This site complies with the HONcode standard for trustworthy health information: verify here.

© 2013   A community of people touched by diabetes, run by the Diabetes Hands Foundation.

Badges  |  Contact Us  |  Terms of Service