So...I have sever gastroparesis and at this point I've lost hope in cureing it...I think my nerve is distroyed. I'm sick all the freakin time ... I run out of breath in a heartbeat... vomiting....weightloss... all that good stuff. I really hate that I have no idea what is truely in store for me... Like how long can I live with this? Everything I see on-line tells me that I will most likly die from this.... Most of us die from dehydration, malnutrian...blood sugar issues... and guess what..... you can not get a transplant! So when my stomach dies.....what then???? When it doesnt work anymore at all what happens??? Do I just die??? Howlong do I have till that happens??? 5 mnths?, 5 yrs? how long CAN I live like this???
My family and friends are all freaked out or just ignoring that it is happening all together... most think I'm gonna die and then others like my brother is like.... if you just work out and eat right you'll be fine....LMAO!!!! For REAL???? YA THINK???? S***!!!! I'm a diabetic...I've been doing that my whole life!!!!
I have two small children a 10 yr old and a 12 yr old... my 12 yr old overheard my Mom talking to a friend and now she thinks she's gonna loose her Mom... She broke down the other night and asked me..."Mommy...are you gonna die"? OMG!!!! Not a conversation that I was ready to have. I dont know if andd when I'm gonna die..... I have no idea how long God id going to bless me to be here...I'm hopeing that I've stopped any progression of this but who's to say....The Dr.'s dont seem to know much about this and when I look on the internet I find ALL the same info....everything that we have already tried.... I'm losseing hope. I hate that people treat me like I'm dieing....It scares me... and it is soooo hard to stay strong for everyone else. It is so hard to hear the pain in there voices...to hear them cry.... it just sucks! But...I'll be okay... I have no other choice. I WANT TO LIVE, I want to see my babies grow up and have husbands and families of there own...