Never a dull moment in my body ... (sigh)

On Tuesday night I went to bed and read for a bit but couldn't get to sleep. About an hour after going to bed as I was dozing I started to feel awful, tried adjusting pillows and tossing and turning, but just felt worse and worse. Then I started to feel seriously sick so got out of bed and went to test. My blood sugar was 8.5, so not anywhere near low.

I was going to head to the bathroom but then thought that I should check my blood pressure, so sat down on the couch. I managed to get the blood pressure cuff on, and the next thing I remember is sounds and images fading back in and looking around trying to figure out what I was seeing. Gradually I realized I was sitting on my couch and a bit after that remembered what had happened. I pressed the button on my blood pressure monitor but was still feeling awful, and I didn't register the result at all. I sat there for a while until I felt like I could stand up without passing out again, and went and got the phone and called one of my best friends, who immediately headed over to my place (in her PJs!). I called my parents after that and asked if I should go to the hospital. My dad asked what my BP had been when I checked it right after coming around. I looked on my monitor and it had been 103/45 with a heart rate of 45, which both seem pretty low to me.

Anyway, my parents didn't want me spending the rest of the night alone so drove across the city to pick me up. My friend stayed with me for the 30 minutes or so it took them to get there, during which my ears stopped ringing and the lightheadedness went away and I felt almost normal. I was fine the rest of the night and in the morning called my doctor, who was not available. Their office advised that I go to emergency given my history of arrhythmias and such, so I did.

The hospital was insanely crowded so basically anyone who could sit was in the waiting room. So I spent five hours in the waiting area interrupted by brief visits to other areas for tests. Everything turned out totally normal (as usual). Because I went after I felt fine, and because no one actually witnessed it, it was impossible to tell what caused me to pass out. The doctor thought it could have been a) some kind of seizure (I have a history of seizures when I was a kid), 2) some heart arrhythmia (also have a history), or c) diabetes has damaged my nervous system so that my body has trouble regulating blood pressure and heart rate. He didn't do any tests for seizures, but tests for the other two things were all totally normal (of course, maybe they hadn't been normal twelve hours earlier, impossible to know). He said if it happens again the next step would be to look into whether it's a seizure, but hopefully that won't happen! The other two possibilities I will probably bring up with my cardiologist and endocrinologist, respectively, to see what they think.

I am just super annoyed because I now have another mysterious THING to do with my health, to add to all the other random crap I have! And this happened right as I was starting to actually feel like my body wasn't going to randomly freak out on me and feeling like I could exercise and push myself a bit without being nervous. *sigh* Sometimes all this random crap bothers me more than diabetes does.

The doctor at the hospital was pretty impressed I'd tested my blood sugar and blood pressure right as things were happening. He said that was a huge help and if it ever happens again I should try and do the same thing as it provides them with super useful information (even the time stamps were useful, showed I'd been out for a few minutes).

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Comment by acidrock23 on December 21, 2012 at 4:22am

Wow, another hair-raising episode! I'm glad you have an awesome support network in place for situations like that! It's sort of odd that the doc would think anything of testing your BG and then BP after "passing" the BG test. I test my BG a ton and don't have that many issues with it but have a BP machine, just in case. It sounds like maybe that's enough info to skip a step or two of tests as, in my experience, docs tend to start with "easy" tests like BG and BP before they infer "gosh, maybe it's something else?" and try other tests, EEG or whatever to look into seizures.

Comment by renka on December 21, 2012 at 4:59am
I have autonomic neuropathy and often pass out when I get up becaus e the blood pressure can't keep up when I stand up BUT I wonder why you didn't feel good originally.... What originally made you even get up to test in the first place so that makes me think maybe you did feel a seizure coming on..... It's especially scary when you live alone and not knowing exactly what happened! Good luck in finding your answer.
Comment by Jen on December 21, 2012 at 7:38am

They did a ton of bloodwork at the hospital, did an ECG, got me to lie down then stand up while checking my BP, and a bunch of other stuff. Everything was totally normal. I'm glad I'm healthy but in a way it's frustrating because the doctor was like, "Just come back if it happens again ..." which isn't very reassuring.

My parents are now thoroughly paranoid and are making me text them every morning and evening.

Comment by Unknown Diabetic on December 21, 2012 at 8:27am

Glad your OK. I would have never thought of checking my BP. What did you find out about the moisture in your pump?

Comment by Betty J on December 21, 2012 at 9:42am

I too check my bs and bp when I'm feeling strange. I have a habit of checking my bp because of kidney disease. I find the longer we live with this disease it's a downhill battle with bumps along the way that always reminds us that we live with a chronic disease where anything can go wrong.


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