I don't think I can fit everything in all at once, so it'll probably seep out over the coming months... there's been happiness, woe, elation and sadness, combined with the day to day grind and the little D monster on my back (all the frickin time) I deserve a holiday honest I do, I've moved, buried a loved one and almost made another baby.

Ostensibly this posts gonna be mostly about infertility stuff.
you've been forewarned (I don't think there's gonna be gore or anything too intimate though...)

Ah well, where was I?... I think the post I wrote last year was about doctors, god complexes, some their brilliance, and sadly some their apathy... well my Inf clinic fall into the last category there, or at least i hope so and that it wasn't a plot engineered to make me change clinics and become someone else's problem... conspiracy theorist moi?

Anyhoo I never saw anyone after they stopped my clomid last June, no calls... nothing! I waited til november for my appointment like a good girl, despite my biological clock screaming the time at me every second of every day. G*ddamnit wouldn't you know I had to miss it, family bereavement, doubly gutting, after all that time I was devastated.
So, rescheduled end of January.
Xmas comes and so does mother nature's gift ( the only time of year I can almost guarantee it'll be prompt). Now it's coming up for my appointment and Lo mother nature is doubly benificent with her gifts as I'm brought down with another less than 3 weeks later WTH? Never has that happened to me before, the Nurses response was...'well sometimes our bodies throw us curve balls.'!!! not very scientific methinks. So appointment day arrives, we're about to leave the house and they ring to tell me my Dr is a no show, sickness blah blah 'whatever!'. I was miffed to be honest.

A few days later I get a letter telling me to book in for SO (super ovulation - which is just basically injected drugs to wake up my sleepy ovaries). I book in, talk it all through on the phone, get all excited..... and then they rang, cancelled everything and told me I have to wait for an appointment for my OH!!! Seriously! No mention of this before, I mean the nurse booked me in!!!
So we waited til the end of March did the necessary had more blood taken from me (can you see my life slipping away?)

Sadly during this time my little Diabetes alert cat passed away and I miscarried AGAIN (I mean what are the odds?)
They didn't care, they didn't even tell me my results.... I did get very depressed and decided to change clinics at the beginning of July.
From start to finish, the referral to first appointment, took 3 weeks !!!! THREE weeks that's all (dropped like a hot potato, I wooonder?)

Right nearly up-to-date now.... Anyway the new clinic seems wonderful, efficient, clean and modern (I did have reservations as I've had so many negative experiences at the main hospital, but this one has faded them to a memory for the moment).
Turns out I have APS (AntiPhospholipid Syndrome or Hughes syndrome), the other clinic knew this too and that is the likely reason for my recurrent miscarriage!! What's even more upsetting than the Dx of yet another thing, is that it's relatively easily treatable and they let me go through M/c twice! My Protein S is elevated too (see all of the above) I was dumbstruck to be honest. But the new guys are on it and want me to go for a scan tomorrow to check for 'masses' etc :0s and Next time MN calls, I have to have an HSG (dye put through my tubes and xrayed) to check for blockages,) They were puzzled as to why it hadn't been done... Me too guys, me too!

So things are rattling on a pace now, hopefully things are starting to go right for a while x x x

Views: 19

Comment by Lori on July 28, 2011 at 5:34pm
I hope things start going right for you now too. :) I'm feeling mad and frustrated for you with all the run around you got at the other clinic! But I hope that everything continues to move swiftly at the new clinic.

Seems like we were of the same mind set today... I haven't blogged in ages but decided today to get back to it. lol I think blogging can be somewhat therapeutic.
Comment by Lou on July 29, 2011 at 2:16pm
Thankyou sweetie.
I was 'outed' on another blog I was writing and kind of shut down entirely but I'm thinking of kickstarting it again too :)


You need to be a member of Diabetes community by Diabetes Hands Foundation: TuDiabetes to add comments!

Join Diabetes community by Diabetes Hands Foundation: TuDiabetes



From the Diabetes Hands Foundation blog...

DHF Joins Diabetes Advocacy Alliance

Diabetes Hands Foundation is incredibly honored to join the Diabetes Advocacy Alliance, an organization with the drive and potential to affect a powerful, positive impact on diabetes and healthcare policy. Diabetes Advocacy Alliance is a 20-member coalition of leading professional Read on! →

Helmsley Charitable Trust Renews Support for DHF

HELMSLEY CHARITABLE TRUST GRANTS SUPPORT TO DIABETES HANDS FOUNDATION FOR FOURTH YEAR  Funding in 2015 to support major transitions in programs and leadership at Diabetes Hands Foundation BERKELEY, CA: February 18, 2015 – The Leona M. and Harry B. Helmsley Read on! →

Diabetes Hands Foundation Team


Melissa Lee
(Interim Executive Director, Editor, has type 1)

Manny Hernandez
(Co-Founder, has LADA)

Emily Coles (Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Director of Operations and Development, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


Lead Administrator

Brian (bsc) (has type 2)


Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)


LIKE us on Facebook

Spread the word


This website is certified by Health On the Net Foundation. Click to verify. This site complies with the HONcode standard for trustworthy health information: verify here.

© 2015   A community of people touched by diabetes, run by the Diabetes Hands Foundation.

Badges  |  Contact Us  |  Terms of Service