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A dangerous pastime. I know. Always thought Beauty and the Beast was one of the better Disney films...

Anyway, a lot of the recent blogs and discussions that I've been reading around the D blog-sphere have gotten me thinking a bit more about my situation and, in particular, the way I feel about diabetes.

I've had people ask me about how I feel about having diabetes before and I usually just give kind of an odd look. I've had it so long, that while I get frustrated with it some times, I also get frustrated that I let myself get sunburned a few weeks ago. Like the color of my eyes, it just is.

Then I started thinking about what I remembered as a child finding out I had diabetes. About the only strong memory I have from being diagnosed at age 7, was that I had a disease. I would have this disease the rest of my life and that it would probably kill me by the time I was 25. It was "the sugar diabetes" and it was all bad.

I doubt that was a conscious decision, but I think I stopped dreaming about my future goals somewhere in all that.

I used to say I was going to be a fireman or an astronaut when I was a kid, as so many do. But after I got D, I have no memories of ever having that type of dream again. Even as I became an adult, I never really reached for anything for myself. I seemed to be living in the present only. Having children changed that some because, as any parent, I want my children to have a better life than I've had. I've always worked hard to give them a good life and have been rewarded for that work, but I never really had a goal of being in management, it just happened. But besides that, I really have no interest or even desire to really dream for something past the day-to-day we all go thru. Maybe, I have a subconscious dream to see grandchildren or just to outlive those folks who told me that all those years ago.

Today, 20 years after I was supposed to be dead, I find a reason to get out of bed every day (mostly because I don't want to be jobless, living under a bridge in a box). But everyday, I fight a battle. At best, that battle will end in a draw. But, realistically, I'll probably lose. Yet, it goes on, I'll be fighting for another 20 years, I simply do it. But I think I've lost the ability to have those dreams. I'm sure my depression has alot to do with this as well, and in fact, my depression may largely stem from being told those things. I don't know.

I'm not even sure why I'm writing this or if I'll even publish it. I guess it's therapeutic, maybe I'm just too pragmatic. Life seems to be a long series of compromises. Maybe my compromise for diabetes was that I'd stop worrying about my dreams so I can worry about today.

Don't make that compromise.

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elaine peterson Comment by elaine peterson on August 5, 2009 at 2:58pm
Good points, kathryn and Kathy......as someone wrote on the site a few weeks back, we are "too blessed to be stressed," and it is never too late to come up with new dreams to follow. Who knows why we are given what we are given to deal with and Diabetes has surely shaped our lives in numerous ways, but it is who we are.
kathryn demarco Comment by kathryn demarco on August 5, 2009 at 2:39pm
Thank you, Scott! I think you should write more! I bet you have some great dreams still.
Kathy Comment by Kathy on August 4, 2009 at 9:20am
I think everyday finished with this disease is a win. We are all going to lose in the end whether we have diabetes or not. But to me it's not a loss. I've been able to enjoy so much in this life and I'm thankful for every day. Live those dreams and shoot for those goals! Be alive! Don't let this or anything else get you down. Life is too short!

(sorry so sappy)
Melissa Holekamp Comment by Melissa Holekamp on August 3, 2009 at 2:07pm
Wow - I can sympathize with this one!

Diagnosed at 15 - I never connected my diagnosis with my lack of goals and aspirations. I also grew up in a church that referred to us as the "Countdown Kids" - assuming the rapture would occur well before I'd be grown, married, a parent, an employee, etc...

Now I wonder which one had more effect... As it is, since the birth of my child, I've suddenly realized - I'm in remarkably good condition for my condition! ;) and I resent the heck out of the constant litany from the doctors of - "you can expect to die early, after amputations, kidney disease and generally being a burden on all those you love." Just shut up and tell me what I can do to make it better! Otherwise - I'll stick to talking to those who've been there.

Thanks for "being there"... and talking about it.
Scott Comment by Scott on August 3, 2009 at 9:18am
Thanks for all the kind words everyone, I appreciate them! It's good to know other people have experienced similar things and are willing to share.

"Live your best life" I like that one. One of my favorite sayings is a much more cynical version "Sometimes you just have to make the least worst choice". LOL, sentiment seems the same tho

I've been in talk therapy, but always seemed to be resistant to it. Heck, I can't even read a self-help book, they always just seem to annoy me. Old and set in my ways, I suppose. One of the biggest issues for me is really negative thinking. I try to be aware when I'm thinking negatively and then try to be more realistic about what the situation really is. And it is ok to give yourself an "attaboy" once in a while.
Anonymous Diabetic Comment by Anonymous Diabetic on August 2, 2009 at 7:13pm
First of all Scott thanks very much for honestly sharing your thoughts and feelings. There are probably many others in the same boat, and this is one of the many great avenues available through tudiabetes. Before I came to tu, I started ablog on Oprah's web site and she has one of the coolest sayings at the top of the page that I will share with you now and it is as follows.

"Live your best life" If you are familiar with her past, she had a lot of reasons to do many other things that would not have lead her to where she is today. There is an ebb and flow to all things in life and we must all, always be mindful of this. Thanks again and I wish you continued success. Hang in and hang on!!!

Love Always
The Anonymous Diabetic.
elaine peterson Comment by elaine peterson on August 2, 2009 at 8:27am
There is so much here to respond to but my first thought was that striving to deal with not being able to take for granted that you even have a future, when other young people are feeling immortal, and then fighting to keep yourself healthy and alive are pretty hard and worthy goals in themselves. Being a good person, father, provider.....putting smiles on the faces of others, not too shabby.
russell kelly Comment by russell kelly on August 2, 2009 at 4:18am
i hear ya brother,from the time i was little my goal was to join the army & stay in for atleast 20.after i got diagnosed,no matter what branch of military i tried to go for i got the same old bs.for someone looking to go army airborne ranger,getting turned down by the coast guard is a hit below the belt.my next was trucking.i soon found out that type 1 people just arent good enough for that either.i went from panning what i'll be doing at 65 to living moment to moment at 28.the past 12-13 years have been a drag to say the least.keep writing though man,it really is therapeutic.save it all & turn it into a book.doesnt matter if 5 or 5000 people read it,as long as 1 understands its worth it.
patti lopez Comment by patti lopez on August 1, 2009 at 1:55pm
Dear Scott, I would never have guessed that you were ever depressed by looking at your pic. I've had blouts of depression several times and like most people you decide to get out of bed because of responsibilities. So now when I'm starting to feel bad I tell myself 'GET OUT OF BED AND LIVE LIFE TODAY TO MAKE THAT GOAL HAPPEN TOMORROW!'

It usually works all the time. We all find ways to be therapeutic to ourselves, but don't give up tomorrow. What I do today is for tomorrow's treasures. I hope you find what I'm talking about. You are a great guy, and always there for us. Let us be there for you too.

Your friend always, Patti
Kelly Rawlings Comment by Kelly Rawlings on August 1, 2009 at 9:40am
The big bummer about depression drugs (unlike insulin) is that they don't work right away, so even if you get on one, it takes at least 6 weeks to see if it works, then you gotta taper off and try another one.

I have supported a close family member through chronic depression. So far, talk therapy (an underused "med" in my opinion), effexor, an anti-anxiety I can't remember the name of, exercise, and a major change in career has worked really, really well for my loved one. But we're talking many years of figuring out what works. I am grateful my loved one has reached a good place, but keep my "constant vigilence" hat on.

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