Things Are Changing!

The migration of TuDiabetes has begun

Content created between now and the launch of our new site on April 20th will NOT be moved to that new home, but our community values and Terms of Service still apply during this time.We are not accepting new members during this transition period. If you want to join the TuDiabetes community please send an e-mail to We will send you an invitation to join after the migration is completed.

Read about the migration and see images of the new site!

Recruiting recently-diagnosed (10 weeks or less) T1s for research: any ideas how to do this? Also, what do you know now that you wish someone had told you then?

Some critical research can only be done on the recently-diagnosed. Unfortunately, with all the shock and confusion, many parents and T1s don't know anything about the research and are very hesitant to participate so early in the process of learning about the disease. Any thoughts on how to recruit the parents, the kids, the adults with T1, or get the doctors and nurses to recruit study participants so early?

Also, if you have had diabetes for a while, or you are the parent or spouse of a T1, what do you know now that you wish had been explained to you during the first few weeks? What would have helped? Were you ready to hear more?

Thanks in advance for your responses!

Views: 16

Tags: T1, advocacy, diabetes, doctors, educators, nurse, nurses, recently-diagnosed, research

Comment by nopucksnosticks on June 24, 2010 at 8:30pm
I was so focused on why this was happening I really missed some of the education and training I got in the first few weeks. I had some real scary lows while trying to manage the 24 hour inuslin with the fast acting insulin. Caregivers were trying to be supportive, but by not verifying that I was really capable of learning my own care "on the job" they inadvertantly put me at risk. I really did not understand what was required of me until I switched to the pump and got a ton of one-on-one training and data. T1's should always see the endro or diabetic specialist as early in the process as possible, and those meetings should be numerous at first in order to insure the information needed is reinforced. I think you are on the right track with the internet for recruitment as that was the first place I looked for information after diagnosis. You need to outline the study and method so folks know you are legitimate. I've been a research volunteer with Mass General for a couple of years and some renumeration (can be just a couple of bucks) does sweeten the pot! As for the spouse response, I'll pass this on to him. Good Luck.
Comment by Chris Stiehl on June 24, 2010 at 9:08pm
Thank you! You were very responsive! I'd love to hear from your spouse. -Chris


You need to be a member of Diabetes community by Diabetes Hands Foundation: TuDiabetes to add comments!

Join Diabetes community by Diabetes Hands Foundation: TuDiabetes



From the Diabetes Hands Foundation blog...

DHF Joins Diabetes Advocacy Alliance

Diabetes Hands Foundation is incredibly honored to join the Diabetes Advocacy Alliance, an organization with the drive and potential to affect a powerful, positive impact on diabetes and healthcare policy. Diabetes Advocacy Alliance is a 20-member coalition of leading professional Read on! →

Helmsley Charitable Trust Renews Support for DHF

HELMSLEY CHARITABLE TRUST GRANTS SUPPORT TO DIABETES HANDS FOUNDATION FOR FOURTH YEAR  Funding in 2015 to support major transitions in programs and leadership at Diabetes Hands Foundation BERKELEY, CA: February 18, 2015 – The Leona M. and Harry B. Helmsley Read on! →

Diabetes Hands Foundation Team


Melissa Lee
(Interim Executive Director, Editor, has type 1)

Manny Hernandez
(Co-Founder, has LADA)

Emily Coles (Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Director of Operations and Development, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


Lead Administrator

Brian (bsc) (has type 2)


Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)


LIKE us on Facebook

Spread the word


This website is certified by Health On the Net Foundation. Click to verify. This site complies with the HONcode standard for trustworthy health information: verify here.

© 2015   A community of people touched by diabetes, run by the Diabetes Hands Foundation.

Badges  |  Contact Us  |  Terms of Service