January 12, 2012. One of a few days that changed my life. The phone range at about 9 a.m.

-Kathy? This is Dr. W. (my kidney doctor).
---(Oh sh-t. What’s gone wrong now?)
-I’m calling because your labs have been trending toward normal over the
last few months. I’ve consulted with other members of my department,
and we tentatively feel that you can stop dialysis. We won’t know how it
will go unless we try.
---So, you mean, cut down on the time of each session?
-No, I mean stop going altogether. Don’t go tomorrow. Make an appointment for labs and office visit in a week.
---Well, this is awfully sudden, and I’m beginning to feel really anxious.
-Hey, listen, I’ve never been able to give news like this to someone. I have told the clinic to save your chair in case you need to go back, but I don’t think so. Have a good day.

Say what? My head started to spin. Why, I’d spent so much energy trying to adapt to dialysis and the pain and restrictions, and now, once again, life has given me a whole new set of circumstances to deal with. (Please, guys, I can tell that some of you are thinking “wow, what great news - why can’t she be happy?)

I walked around the rest of the day in a zombie-like state, thinking a) what will I do for insurance if I no longer qualify for SS disability? b) what am I going to do with all the extra time on my hands; c) every time my life calms down, something has to come along and rattle the cage; d) I didn’t get to say goodbye to my friends on the unit - since patient info is confidential, the staff will not tell anyone what happened and most people with think I’m dead;
e)if I can truly accept this gift, then I will constantly be tortured by the chance the the kidneys can again fail - maybe tomorrow, maybe next month, maybe next year. I was so confused I wanted to stand under the freeway overpass and scream. Emotions have run high the past 14 months and I’d crammed a lot of stuff away.

Thankfully, my therapist had an opening the next day, and, after talking with him I felt much calmer.

Went I went in for my doctor’s appointment the next week, things looked good. He said it is not uncommon for people to undergo acute kidney failure after a trauma to the body, such as surgery, accident, or illness. In my case it was the cancer surgery, the cardiac arrest, and the multiple organ shutdown syndrome. However, then the kidneys recover within 7-10 days. This is different than chronic kidney failure, which pwd’s are vulnerable to, and comes on gradually over a period of years.

So, instead of 7-10 weeks, mine came back after 14 months. The head of the nephrology department said he’d only seen a couple of other cases like mine in his 35 years of practice. They don’t know what caused the recovery. And yes, he did use the word “miracle”.

At this point, Dr W said that the main focus for me needs to be “heart health”, which includes the blood vessels. I need to continue to be as active as possible; monitor my bp every day at home (which I’ve been doing for the last 7 years anyway); do not take any new prescription or OTC meds without checking with him (did you know nsaids, such as Advil, can be damaging even to healthy kidneys?); take prescription calcium and Vitamin D supplements; weigh myself everyday to be alert for unusual fluid gains; if, possible, drop some fat - 10 pounds would be great, but even 5 is significant. I also take a diuretic to increase urine output. I can do all of these things. No biggie.

I told a couple of people on the OC early on, but I didn’t want to jinx it by making the news widespread until a month had passed. I had my 4 week appointment today and everything looks great. I told Dr. W. “I think I need to give you a hug.” And he replied, with a big smile on his face, “yes, it’s certainly called for”.

Tonight I’m going to put my “dialysis bag” way in the back of my closet. It contains a blanket, head pillow, arm pillow, eye mask, emergency cabfare, reading material, extra treatments for hypos and my long sparkly black elbow-length glove. People get extremely cold when they dialyze and need to be covered up. But the arm with the access has to be completely exposed so the staff can be sure you don’t fall asleep and roll on it or smush it into the chair. I was thrilled to find the long gloves. They helped a lot.

So now I am left with the unanswerable questions of “why me?” and “why not me?” But I think there is an answer - to embrace the ever present richness of life. And then say “thank you”.

Views: 761

Comment by Linda G on February 20, 2012 at 5:27pm

My gosh Kathy....this IS the best of the best news!!! I'm SO happy for you ♥

Comment by Trudy on February 20, 2012 at 5:41pm

Astounding. Wonderful. Well, never mind all the adjectives that come to mind -- I am just so pleased and happy for you. Medical miracles still happen! Are you allowed a celebration drink?

Comment by Richard157 on February 20, 2012 at 5:47pm

Kathy, I am stunned, and so very happy for you!!! You are a very special lady and you deserv this miracle. I have high hopes for you. You are riding on a cloud and may not have your feet on the ground for awhile now. That is okay, enjoy the ride. I am expecting to be in touch with you for many years to come!!

Richard Vaughn
..

Comment by Lloyd on February 20, 2012 at 5:56pm

Such wonderful news Kathy!

-Lloyd

Comment by Robyn on February 20, 2012 at 6:56pm

Tears of happiness for one very deserving Lady. Very happy for you and yes....Smile and say Thank You. xo

Comment by Karen on February 20, 2012 at 7:25pm

Kathy, I am so, so, happy for you and your post made me hopeful for some of my issues I am dealing with now. Thanks for sharing. Now we need a song to celebrate the good news.

Comment by Didi on February 20, 2012 at 8:01pm

Hi Kathy!! Congratulations! I perfectly understand the fact that you were scared. I am always the 1 out of whatever number that happens something to. Take this time to enjoy lifes wonders. With Gods grace you will NEVER go back on dialysis.

Comment by Gerri on February 20, 2012 at 8:24pm

I got goosebumps at your joyful news! A dream come true. The most wondrous event ever. Celebrating for you & with you. Hugs, Kathy.

Comment by Doris D on February 20, 2012 at 8:27pm

Kathey Sooo glad for u!!! God surprises us lots don't He???

Comment by LaGuitariste on February 20, 2012 at 11:21pm

Well, that's just stunningly, marvelously cool. Congratulations and hugs all around!!!

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