Some support for a breaking heart

I have a daughter who is now 6 but was 2 at her diagnosis of type 1 diabetes. We accepted the fact that we were going to lead a some what different life with carb counting, injections, and MANY questions from others. But recently I have come to a point where I am feeling so much hurt for her. Now that she is in Kindergarten she has been invited to several sleepovers and i always have to tell her No because she can't do her care by herself quite yet we are working on it but not quite there and it breaks my heart to listen to her cry and see her tears and there is nothing that I can do for her. I didn't know if there was anyone out there who had been through this before who had suggestions...I just want her to lead as normal of a life as possible and I hate that I can't let her have that.

Views: 6

Tags: 1, diabetes, diabetics, moms, of, type

Comment by Sloane on March 30, 2010 at 4:27pm
Welcome to TuD! I can't say I've been through this before, but I can help a little bit. For the sleepovers- she can definitely go! Call the guardian at the sleepover beforehand and ask to meet for a little bit- show them all the basics, lows, highs, syringes, what to do in an emergency, etc. Leave emergency numbers and a basic page of instructions. If you don't feel comfortable, let her stay for half the night, then pick her up before everyone goes to sleep. Getting a pump also sounds like something that would be good. Have you looked into that at all? Pumps really make everything a lot easier!
Comment by Devon on March 30, 2010 at 4:36pm
I don't know if you'd be up for it, but what about having the sleep over at your place? Maybe that way your daughter could feel like she's part of the group. Not that I've ever had multiple 6 year olds in my house at one time, but it's something to think about.
Comment by believe on March 30, 2010 at 5:16pm
Sloane-
We have tried a pump and she was on it for about a year and we came to find out that she is allergic to the adhisesives on the pumps. We have tried two different pumps and several different ways to work around getting rid of it but no luck and she actually ended up hospitalized for a reaction to adhesive on her pump. And I have been letting her go to the parties and staying and then taking her home after most of the party is over. Also I have thought about going over things with the parent and leaving number and instructions. thank you so much for everyones help
Comment by Cathy Jacobson on March 31, 2010 at 5:59pm
So many good ideas for you to consider. Most of my friends with children in the same situation have had many sleep overs at their homes; just so that their children can have that experience. If you have to wake her in the middle of the night, they might not even be asleep, and you won't sleep anyway ---- why do they call them sleep overs when no one sleeps? OR call the mother of the little hostess and explain your situation to her, and ask if she would mind having you drop by to take care of your daughter. I am sure they won't, I would have loved to have another adult around. Good luck, my heart is with you...it's hard enough to be an adult and have "D", but to have a child with "D"...that's got to pull at all your heart strings.

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