Story of My Daughter's Type 1 Diagnosis at 18 months of age

Sorry Im so late with this but I finally got our story done.

 
My daughter Melanie was diagnosed in 2006 at the age of 18 months. I would say over a month or two starting in either November or December 2006 she was getting symptoms such as drinking (it never seemed to be enough no matter how much she drank but it was maybe a little more than usual). If you have kids you know they love to drink and constantly ask for drinks so it was hard to go by this. Melanie would also wet her diapers constantly where I was changing them hourly and the crib was always soaked by the morning. I never throught anything of this but thought ok she is drinking more so wetting her diapers more.
I remember going away after Christmas for a few days with my kids and all my daughter wanted to do was drink. I remember feeling bad for her because she was so thirsty.

January 2006
Around the second week of January 2006 before Melanie’s diagnosis she was sluggish, tired and sleeping on & off all the time. She also complained that her stomach hurt and would dry heave. At this point I thought maybe she had the flu. After this went on for 2-3days I finally made an appointment for the doctor as i figured this wasnt normal for her to be so sleepy for 2 days. I had even called prior and didn't get much of an answer from the receptionist. Well during the middle of the night my husband said Melanie's breathing sounded labored and thought i should take her to the hospital. Her crib was in our room so my husband heard her. I brought her to the hospital and they took her right away. At this point she was in critical condition and got the diagnosis. They told me it was a good thing I brought her in or she may not have made it until the morning. She had some brain swelling, was in diabetic ketoacidosis, and BS was around 1000. I remember crying as we didn’t know what was going to happen. I was really scared. Luckily by the end of the night she started coming around and was conscious.
Melanie was in the ICU for a few days and then the PICU. The nurse showed us alot and was very helpful. I remember coming in one morning (my husband would stay overnights with my daughter) and the nurse going over low blood sugars. I was like scared since I didnt know this could happen also. It was a very emotional time. I feel like all I did was cry. A few times my daughter needed a blood test which one doctor couldn't do so they would have to get another doctor to take over and I couldn't be in the same room as I just broke down. Also during this time she developed a blood clot in her leg because they had to put a central line in there upon her arrival in the hospital because she was so dehydrated. At the time they didnt know she had a blood clot. A few days after the doctors were encouraging her to walk around and she kept complaining to me that she couldnt because her leg hurt. Many times heard the doctor tell me to get her up. I was mad and told them her leg hurts I cant make her walk if it hurts. I knew something more was wrong. On a Sunday night when they dont normally do tests had someone come in to do a scan and sure enough she had a dvt. Not only was she taking insulin but now I had to give her two more big injections of a blood thinner. Before I left the hospital felt so overwhelmed and it was very emotional leaving. It finally hit me that I would be on my own in this and didnt have the nurse to rely on anymore. Also figuring out the correction factors by hand was a pain. It was a rough few weeks but we did adjust and tried to stay positive. Not only did we have the diabetes but had to get the blood clot monitored and those two big injections I hated to do on top of her regular injections. This went on for about two months until the doctor said it was ok for her to go off. In May 2006 we put Melanie on the Minimed Pump which was the best thing we ever did. The kids loves to eat constantly and would not be able to if she didn't have the pump. Now 7 years later I say we adjusted really well and it is just a normal part of our lives. She is the joy of my life!

Anyway a big lesson I learned was if you don’t think something is right to get it checked right away. Had I been better informed beforehand that this kind of thing could happen to a little child I would have seen the signs and known. I think doctors should give new parents some information about it as it is something that can happen. Maybe they need to be better informed also. It doesn’t matter how old someone is they can still get Type 1 diabetes. At the time our pediatrician didnt treat any kids in his practice who had it so it was also a little new to them. He did give his receptionist an earful after this happened (although I don't blame her I blame myself for letting it go on too long). Now I don't take things too lightly anymore it was a big wake up call for me.

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Tags: 1, Type, diabetes, journey, juvenile, of, our, symptoms, type

Comment by Linda on May 17, 2013 at 9:57am

Hi Ginger9708,
Your story brought tears to my eyes. I can only imagine what you must have went through. I've had T1 diabetes for 52 years now, diagnosed at age 8. Your daughter will do just fine with your support. Anyway I just wanted you to know how much your story moved me.
Take care.

Comment by Ginger9708 on May 17, 2013 at 2:53pm

thanks very much Linda

Comment by shoshana27 on May 18, 2013 at 8:04am

i can't imagine what my mother went through. i was not yet 3 & am now 79 +
good luck

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