Time for change.
I wish that I could change the minds of my medical team. Sounds silly really because they're the ones who should know all the answers or at least have a better idea than I do.
Because I was diagnosed with type 2 diabetes initially, even though most of the evidence looks like I'm type 1/LADA, they keep turning me down for a GAD-65 test and C-peptide tests. And they are still treating me with pills and insulin/nph also. I've gone from pills to using insulin in less than three years. I'm told this isn't usual for a type 2.. that it usually happens around five years, if it is LADA, it's usually under five years.
I don't have high cholesterol, I'm not overweight, I'm a bit on the skinny side in size. My triglicerides are good and my blood pressure is excellent. I just don't now and never have fitted the profile of someone with type 2.. So why refuse to look further and check to see if I'm right and test for LADA?
Even the Endo said that he doesn't do a GAD-65 test often because they're unreliable and he only does them if he believes that there is no pancreatic funtion making insulin at all! And my doctor didn't even know what a GAD-65 test was. My diabetes counselor is a bit more open on some things, but I feel that I maybe should be off the pills now, since they seem to do nothing for me and onto lunch and dinner time injections. Dinner time especially as this is when my blood sugar goes the highest. But no, they keep increasing the dose of NPH and telling me to continue with the pills.
Am I the only one who thinks that they should be listening to me.. I would like to find someone who will at least listen to what I'm saying to them in the medical field instead of just looking at my first virdict and not looking at the big picture.. not taking this seriously.. They all seem to be working on the fact that I'm type 2 and checking for nothing else. I feel that it will soon be time to change my whole team and go with someone that will at least investigate what I believe to be true.
They make you feel paranoid.. but just won't do anything about finding out the truth. It just makes me so mad! Lol.. now I'll have to go and de-stress!
Because I was diagnosed with type 2 diabetes initially, even though most of the evidence looks like I'm type 1/LADA, they keep turning me down for a GAD-65 test and C-peptide tests. And they are still treating me with pills and insulin/nph also. I've gone from pills to using insulin in less than three years. I'm told this isn't usual for a type 2.. that it usually happens around five years, if it is LADA, it's usually under five years.
I don't have high cholesterol, I'm not overweight, I'm a bit on the skinny side in size. My triglicerides are good and my blood pressure is excellent. I just don't now and never have fitted the profile of someone with type 2.. So why refuse to look further and check to see if I'm right and test for LADA?
Even the Endo said that he doesn't do a GAD-65 test often because they're unreliable and he only does them if he believes that there is no pancreatic funtion making insulin at all! And my doctor didn't even know what a GAD-65 test was. My diabetes counselor is a bit more open on some things, but I feel that I maybe should be off the pills now, since they seem to do nothing for me and onto lunch and dinner time injections. Dinner time especially as this is when my blood sugar goes the highest. But no, they keep increasing the dose of NPH and telling me to continue with the pills.
Am I the only one who thinks that they should be listening to me.. I would like to find someone who will at least listen to what I'm saying to them in the medical field instead of just looking at my first virdict and not looking at the big picture.. not taking this seriously.. They all seem to be working on the fact that I'm type 2 and checking for nothing else. I feel that it will soon be time to change my whole team and go with someone that will at least investigate what I believe to be true.
They make you feel paranoid.. but just won't do anything about finding out the truth. It just makes me so mad! Lol.. now I'll have to go and de-stress!
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Comment by Robyn on March 30, 2010 at 11:50pm -
Sweetie, you need to find another Doctor. I hope that you do and get the treatment you deserve and need.
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Comment by Denise Suzanne Grant on March 30, 2010 at 11:54pm -
Hi Robyn.. how are you? I think I need a whole team change!..lol
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Comment by Robyn on March 31, 2010 at 12:01am
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I am ok...just coming out of a very low BS....hit hard and fast, hate those! :) YES, start fresh with a doctor that is going to do everything they should to help you. Good luck and goodnight.
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Comment by Robyn on March 31, 2010 at 12:02am
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All new team is a very smart idea...go for it.
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Comment by Gerri on March 31, 2010 at 12:07am -
Arrrgh! Fire them all. I'd be spitting mad.
NPH is awful & outdated.
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Comment by Denise Suzanne Grant on March 31, 2010 at 12:08am
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Goodnight Robyn, sleep well. :-) x
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Comment by Denise Suzanne Grant on March 31, 2010 at 12:11am
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Lol, thanks Gerri. Yeah.. I think it's the best way.. x
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Comment by Gerri on March 31, 2010 at 12:17am
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I could scream & cry how many times I've heard people go through what you are. A whole bloody team & not one has a clue or listens. Staggering, infuriating & just plain nuts. Even worse for people who aren't as informed as you who stumble along getting sick because they don't question there's a better way.
Guess I was fortunate in a weird way to get properly diagnosed because I was near death. Had I been less sick, I probably would have been classified T2 based on my age.
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Comment by Denise Suzanne Grant on March 31, 2010 at 12:33am
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Here's how clueless my doctor is Gerri. I got a letter today from her talking about tests that I had done, A1c and cholesterol tests. The time before last my cholesterol had been a little raised because I had had high stress levels. But this last test I had, showed that they were down again and well in the normal range.
She's been trying to push me to take statins for months, and I've been refusing.. why treat something that isn't broken! Anyhow, today the letter was praising me on getting my levels down etc, then at the foot of the letter she said, "If you feel at anytime you need to start taking statins, please email me."
Like I haven't told her every time I go, I don't want to take statins, don't need to take statins.. but she still has to try and get me on to them! Still won't take NO for an answer. I think I might look for someone who doesn't mind me looking into a natural therapy before pushing yet another pill in my direction.
It was a hard way for you to find out what you had Gerri.. Hopefully now you're on the best treatment though. I feel that if they don't know what I have, how can they best treat me? I was referred to the endo through the doctor, so maybe they're collaborating..lol
Just heading to bed now Gerri.. Thank you for your replies.. it's good to know that I'm not alone in thinking they should check. x
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Comment by Gerri on March 31, 2010 at 12:59am
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I've had the same statin conversation with my endo & PCP. I hear ya! I refuse to take them. I think they're getting trips to the Carribean based on how many statin prescriptions they write. Pro forma to put us all on dangerous drugs for "prevention." Guess doctors don't get perks for lab tests, just pills.
It's also crazed for you to be NPH, the most unpredictable insulin.
My former endo told me not to worry every time I asked a question. I was outta there.
Makes no sense for people to be treated without a diagnosis based on appropriate tests. I think it's malpractice.
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