Comment by Brian (bsc) on February 5, 2013 at 5:27am

As I go through the list, I count off the things I have been diagnosed with. There are more than I care to count, many which are simply complications or related conditions. But it sounds like your doctors let you down big time. So many of those things in your list point to diabetes, your doctors should have been all over your diagnosis. Instead, it sounds like they refused to give you proper tests and dragged your through a lot of irrelevant and ultimately harmful care. I think many of us have struggled with doctors who have failed to properly diagnose our diabetes. Many doctors apparently are not competent to diagnose T1 unless you appear in the ER in DKA. This is sad because there are a bunch of simple cost effective tests that can diagnose T1 with 85-90% accuracy.

Comment by renka on February 5, 2013 at 7:23am

I too have been misdiagnosed over the years and it's scary! As my dad would say, "that's why it's called medical PRACTICE". I have friends that strictly go by what their docs say even if it doesn't sound right nd feels wrong and it frustrates me so much. One thing I've learned with having diabetes and gastroparesis over the last 29 years is that I definatley have to be my own advocate! It even got to the point where one day I told one doc to F off and walked out of his office and reported him. Not proud of my language but that's how upset I got and I never went back to him EVER! Good luck!

Comment by PatientX on February 5, 2013 at 4:23pm

Do you take Lipitor or any statins? I had some of your symptoms and as I pulled back on how much statins I was taking some of those symptoms disappeared. Kidney issues and neuropathy got better. Maybe medicine side effects?

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