What's up with advocacy at Diabetes Hands Foundation?

At Diabetes Hands Foundation (the nonprofit I was fortunate to co-found back in 2008, which drives TuDiabetes among other programs) diabetes advocacy has become an increasingly important part of our work over time. Since 2013, these efforts took us down a path that resulted in a roadmap with three core components:

1) Building up a database of Active Diabetes Advocates:
A robust database with information on individuals in the diabetes community, their advocacy interests, and their appetite for engagement will enable efforts to fill gaps and activate the patient base. Such a database will enable DHF to assist active advocacy campaigns as well as complement advocacy efforts by other diabetes organizations.

2) Develop an Online Diabetes Action Hub
There is a need for a one-stop online destination for People with Diabetes (PWD) interested in advocacy opportunities. PWD are active online and through many national organizations. But there is no single, central site - or hub - where an individual can locate information on a broad range of issues and advocacy opportunities related to diabetes. If an individual wants to engage in advocacy, it requires a great deal of effort to research and locate reliable information.

3) Create a Diabetes Advocacy Academy
The diabetes community can learn from both the HIV/AIDS and the breast cancer community’s successes in creating “patient-experts” and a large, educated advocacy base to lead patient-driven change. An online diabetes advocacy academy to develop patient-experts and educate the advocacy base will help fill skill and knowledge gaps in the diabetes community. This initiative provides a mechanism for multiple diabetes stakeholders to come together to train and nurture the diabetes patient-expert who will be an independent resource for all.

We have started to give life to these efforts:
1) Through this survey, which I invite you to complete, so we may grow this database..
2) Through this preliminary version of a hub, which currently dives into a single issue: speaking up for coordinated diabetes policy.
3) Through the experience we had at #MasterLab in Orlando, July 2. You can look at all the footage and Powerpoints of the presentations.

With your participation and support, the coming months and years will translate into more advocacy efforts. I hope you will join me in this effort, by completing this survey today.

Views: 117

Comment by curlysarah on August 27, 2014 at 4:47pm

Well done Manny! Love It!!!!!!!

Comment by Manny Hernandez on August 27, 2014 at 7:42pm

Thanks for completing the survey, Sarah!

Comment by Stoner on August 27, 2014 at 8:42pm

YES!!!

Comment by Judith in Portland on August 27, 2014 at 8:53pm

Bravo. Of course.....

Comment by smileandnod on August 28, 2014 at 11:18am

This makes me happy, thank you Manny!

Comment by Lorraine on October 3, 2014 at 10:17am

Thanks so much, Manny. Excellent work.

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Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)

DHF VOLUNTEERS


Lead Administrator

Brian (bsc) (has type 2)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)

 

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