I came to Mississippi just over 4 years ago. When I left Delaware, I had to leave a great endocrinologist and live the life of the uninsured for about 18 months. I was buying insulin over the counter and had friends who would supply syringes when I needed them.
Once my job here became permanent I looked for and found another great doctor. I managed to keep him for about 8 months until he made a choice to leave private practice. He left me in the care of a doctor that he thought would suit me best. My next trip in I was seen by doctor A (no names will be used). Who I guess was a student physician (although I was never told that) because she would never see me without another doctor present. It seemed that I was going to have a team of three doctors. Okay, I deal with that. Then my kidneys took a nose dive and in the aftermath I was taken off of Byetta by this team of 3 doctors. I was losing weight, something that had been so difficult was happening naturally while on the Byetta. Once I was off the medicine the weight gain started. My wife will tell you that I eat right and do not over eat. My meals did not change but I was now gaining weight.
On my next trip to the kidney specialist I was told to go back on the Byetta, that it had nothing to do with what happened with my kidneys. He was obviously right because my kidney function returned to their normal levels, for me anyway, and the weight loss resumed. Total time between being taken off Byetta and placed back on was 4 months. So I go back to the endocrinologist thinking all is well. Easy for me to say. I saw a new group of doctors who told me that if I continued to take the Byetta, they would not treat me. When pressed they told me I should wait until I could see "my real doctor". Well who are you people? I never got that question answered. My wife was furious and, by the way, she is the head of my care team.
So the search was on for another doctor. Enter doctor B (or would that be G or H?). My first visit to this doctors office all seemed great. Great office and a great staff. Then came the list of do's and don'ts. Like no fruits at all. No juice, no canned fruit, no fresh fruit. No fruit. Now I when I was in school I was taught the old food triangle and if memory serves fruit was on that list. See, I don't believe in cutting any thing out of my diet. I believe in moderation. The list of don't continued. When pressed on these about how hard these rules should be followed I was told "that is the way it shall be."
Then came the manadory classes on everything from food preparation to sliding scales. I work an early morning shift (4AM). I was supposed to drive 47 miles each way to a class I had to pay for but my insurance would not cover that would keep me up until 10:30 or 11 PM. Come on. Work with me here doc.
In the end, I could have kept on seeing him and never followed his rules or attended his classes. I could have offered lame excuses and kept right on seeing him. But the doctor patient relationship is built on trust. I knew that if I stayed with his practice that I would not be able to lie.
So I find myself with only my family doctor and my kidney specialist. It has been that way for over a year. My average A1c for the year is 5.2. I have had no lows. A few high BG but no lows that required any intervention. Makes me wonder sometimes if I really need an endo. Problem is, I know that I do. Sooner or later the wheels will come off the bus and I will find myself needing to see someone with a little more knowledge.
I just find it odd that I have one practice that will not listen to another doctor who is a specialist. Then I have another who seems to believe that diabetes is a one size fits all disease.
I have been a diabetic since 1988. I am a T2 who has been on insulin since 1996. I know my diabetes and how it responds. Why is it that these doctors refuse to let me be a part of my treatment?