Will Someone Stop This Merry-Go-Round That I'm On? (Part 2)

I now have my supplies around me: my diet coke over perfectly formed ice cubes in a patriotic, light-up red-white-and-blue cup and straw. There is no excuse for me not to jump right in and bore y'all to death!!

My last blog left me still in a rehab facility desperately struggling to get out to some normal life. Normal around the "home" is just this side short of normal normal. Oh, they do have their routines to keep things on an even keel ... for them. The days had settled into their routine for me. Just get up, get dressed according to their time schedule, eat (maybe hot; maybe not) and then .... nothing! They had cited the lack of progress as the reason for stopping therapy. They had been adjusting me to my prosthetic but it was slow going. In fact, the arthritis was getting to my knee in the right leg and causing great difficulty in walking. I could only go a few feet before my knee put an end to it. Hence the decision to stop therapy. Maybe sometime in the near future it will be paid for by Medicare as "maintenance." Some people will just not improve according to governmental standards but to maintain them would be more beneficial than dropping therapy altogether. I must be one of "them."

As my progress seems to have stalled, the rest of my life needs to move forward. I started to campaign for release. They said I wasn't ready. Without therapy, how can I GET ready? They started calling care team meetings every 2 or so months and pointing out where I needed improvement. I "needed" to use my lymphedema machine every day; take time out each day to elevate my legs; use my bi-pap machine nightly. OK. Who was helping me hook up these things? Who wrecked one whole side of my lymphedema machine by dropping it off the end of the bed where it didn't belong in the first place? Who refused to let me have a reclining lift chair in my room so I could easily get in and raise my legs? Everywhere I wanted to turn, there was a roadblock. When I got sick of hearing their reasonings, I called in .... ta da: Disability Rights of Wisconsin.

Elizabeth (the gal I had worked with in the previous occasions) came right up to bat for me. All she had to know is that I wanted out! Not in assisted living, but back to my apartment. After one of the team meetings scheduled, Elizabeth indicated to me that she had threatened a federal investigation into charges that they were holding me illegally!! She said she was going to bring in State Officials that could force management off dead center. We then had more meetings with them present. Everyone was on their toes; and before you could say "Jacques Robinson" they were talking release "in a couple of months." It also helped to expose their little blackmail campaign that I "could be released much earlier if I would consent to assisted living." Uh huh. Not for me.

July 30, 2012

Guess what? The delivery of a bouncing baby power chair in candy apple red was to occur sometime today. Would you believe that I later found out it cost $14,783+? Although it was brand new, I knew there were problems with it and that it should be looked at. Well, let it be known that I wasn't appreciative of the fact that this meant that I was very, very close to release!! TOMORROW! August 1, 2012. Boy was I running around like crazy; saying goodbye to people and finishing packing and all those crazy details.

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Comment by David B. on May 15, 2013 at 3:38pm

So glad to see you haven't given up raising heck... Maybe you should blog a diary of a week's routine and the times when you interface with your bureaucracy - both positive and negative.

Comment by Brunetta on May 19, 2013 at 3:29am

Tell us more Lois!! what happened with the chair?

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