Wow... we just need 10 minutes more explanation I think....

       Ok so as many post on this web site and many others that I have read over the past few months I think I have found 2 people that had a doctor that cared enough to really sit down with their patient and explain this "DIABETES" to them. I think I got the same 5 minute visit from a dietitian and 2 minute discussion from my Endo. While recovering from a scary case of DKA. I was in the Hospital for more than 20 minutes it would not have been a bad idea to bring me a video or stay in my room and explain a thing or two before sending me home to Carb Count, and bolus, and basal, and eat all the right foods. I didn't even know how to operate my meter because they took my blood sugars with a fancy hospital one the entire time. If they planned on giving me one then they should have done it at the begging and said OK we check then you check with your meter.Especially since (I know this is going to make me sound dumb but I don't care) I started reading the directions on how to use that fancy lancet device from Accu-Chek and accidentally broke the first one they gave me cause I missed the note that said "Don't turn the needle advance while the unit is charged and the little yellow button is highlighted" OOOOPSSSS.... by the way I love that lancet device now that I know how to use it. Very cool for my traveling I do so I don't have to carry the other style of single lancets around when out on the road.

     It frustrates me to see that I was billed for "EDUCATION" during my stay.... uh HAHAHAHAHAHA.... I wish my college degree was so easy to get as my DIABETES degree. The only difference is one degree might KILL ME if I get the final test wrong. I was not offered any outside education courses or support group info and was totally in the dark about WHY my body shut down like it did. I just knew that I was now "Diabetic" and needed to start watching what I ate and do a bunch of math to figure out my insulin.

      It seems that if you go to your primary care giver and they find you to be diabetic that yes, it will be a bit brief and they may suggest classes outside their office ( I was not even offered something like that cause I would have gone to it and Brought NOTE PAPER). But when you are in the hospital almost dieing from your condition I would think they would want to do a better job of keeping out of that same situation as best as they can.

    In fact one of my nurses kind of scared me. I am not sure she REALLY knew what Diabetes was. Which sounds strange but she was really no help that day she was on shift. The other nurses where great for the day to day stuff. I just think there should have been MORE education given. My dietitian seriously talked to me about my new "diet" for about 5 minutes and then handed me some papers with more info and web sites to go read. OK I can read those. BUT WOW. At least help me use the equipment you are about to send me home with. I used syringes the entire time I was in the hospital and then sent home with some PEN thinggy..... OH BOY. 

    Sorry but I just got off another post that said the same things I am talking about. Now I am not asking for them to cram all the information into my head all in one day but at least help me use my new equipment and explain to me more than 5 minutes of diet and carb counting. Sorry for the rant but I didn't know any better then and now that I have more information under my belt it really is sad to see what I left not knowing that I really should have been told.

   I would really like to change jobs and do diabetes education for hospitals with DKA patients in house. From what I read there are plenty out there and I live in the Houston area so I am sure I could hop around from Hospital to Hospital and keep busy. Anyway, Thanks TuD for the ability you provide for my current steam release.

I need a nap........

Views: 174

Comment by palomino on March 28, 2012 at 9:18pm

WOW. I was sent to the ER because student health services was freaking out over my fasting BG, but wasn't actually in DKA. Even so, after they gave me fluids and ran more tests... they went over the basics with me. One really nice paramedic-in-training took the glucometer out, put it all together for me and then they showed me how to prick my finger, and how to test it.. then they made me do it myself.

Later, they told me how to give my insulin and made me administer it in front of them. Then I got some really crappy sliding scale and used it over the weekend and on that Monday went in for a 'recheck' appointment with the resident.

I was shocked when he couldn't really answer any of my questions. I guess I felt like if I were a medical resident who had a case coming in on Monday that I'd seen in the hospital on Friday- I would do some research so I could help them. He didn't make any changes at all in addition to not being able to answer my questions. But he did set me up with a GP that could...

Anyway, it is crazy how LITTLE they told me initially, though they did make sure I could use teh glucometer and pens before I left!

I'm sorry you had such a terrible time. I think your idea to work with DKA patients is fantastic.

Comment by Mikeonline2821 on March 29, 2012 at 7:53am
I wish they gave me that much info. Hahaha ...... but not everyone is like me and a lot of you out there that go home and read read read. Some people go home and have no idea they need to be proactive. Especially if they are "just" considered pre-diabetic. That is the person that needs a lot of education and care to understand they may not need to fully deal with this with corrective lifestyle. No garuntee but there is that chance. CRAZY.
Comment by smileandnod on March 29, 2012 at 9:51am

Very true Mike. I also thought about changing careers to become a CDE because I think there's such a need here in the South and very little education available. When I checked the requirements to become a CDE, I saw that you have to be in a medical field type position already like a nurse or a pharmacist...I thought to myself - what about a life time of diabetes experience, doesn't that qualify?

Comment by Mikeonline2821 on March 29, 2012 at 10:18am
I was actually happy to see the requirement was a little tough to meet. I still am going to strive to get there but we will see how well I can do as I travel a lot for my job but this is my goal. I am just staring to study all the options but yes a good standby person to come in and work with new diabetics would be great. I am working to make my small difference as I can.
Comment by palomino on March 29, 2012 at 2:55pm

Wonder if a DVM is adequate to become a CDE... LOL. I need a backup plan if I can't find a job! But I think it would drive me crazy to be in an office all day.

Comment by LaGuitariste on March 29, 2012 at 4:55pm

I had this crazy idea of getting certified/licensed as an esthetician and then doing home visits to give pedicures to older or disabled diabetics: foot checks, teaching good foot care, helping people who are too stiff and sore to do their own foot care, selling people long-handled mirrors, long-handled brushes and long-handled lotion applicators to help them do their own foot inspections/care between visits, etc.

I figured while I was there I could sell my customer books like "How to Think Like a Pancreas" and "Using Insulin", hand out low-carb diet sheets with recipes, give them hand-outs that list useful websites or reading lists. I could show people how to rub their feet with mink oil (like Dr. Bernstein suggests) and keep super dry between the toes to prevent infections (using my "toe flossing with rolled paper towels" technique), etc. I could be a kind of diabetes self-management "evangelist" under the cover of being "just an esthetician".

Feel free to steal my idea. My own mobility issues (back, hip, knee) make it difficult for me to seriously consider doing home visits (all the different chair heights, stairs without hand rails, bending and carrying basins of water would be a big problem for me.)

Comment by palomino on March 29, 2012 at 5:21pm

That's a great idea. But I hate feet (lol).

I've thought about going into diabetes research..

Comment by Mikeonline2821 on March 30, 2012 at 7:43am

I would even be happy to find a prevention. Might be too late for those of us with no insulin production (maybe something can be done) but at least lets get out there and stop the problem from happening to new patients. We need to find the Diabetes "FLU" Shot. I hope in some small way I can help with that. Thanks everyone... you are all great.

Comment by Randy on March 30, 2012 at 9:29am

I am lucky. I have a great PCP who is willing to take as much time with me as it takes. The first several visits were 2 hours or longer. Most of the time it seems like he is more interested in what I am doing than I am in what he has for me now. My commitment to this seems to energize him. Even so, I would go home in the beginning and realize there were gaping holes in the information. Not his fault, just too much to take in at once. The CDE was a complete waste of time, to be polite. I knew then it would be on me to find the resources for the knowledge I needed. Welcome to uD.

After spending the last 18 months studying and practicing I've come to this conclusion. Yes, in general the medical community is sorely lacking in their own knowledge of D and its management. And yes, the ADA has their head in a very dark place. But even with everything my doctor was willing to do for me, it still was not enough. He does not have D. Therefore his knowledge of living with this is very limited. I knew he could only give me his best guess for a lot of the questions I had early on. I also could not talk with him every day to ask more questions.

So I thought to myself, "Self, what would have been the coolest, most helpful support you could have had from the beginning?". My answer was another PWD. Some one to let me know I'm not alone. Who understands what it takes to do this and understands the individuality of D. Some one I could call in a panic. Some one who could offer me hope, whom had been there and done that. Welcome to TuD.

But what if we could put together a grass roots system of PWD that could act as "sponsors"(like AA) for newly diagnosed people? A real time support group who could offer guidance in finding your own way. Any thoughts or ideas on how to make this happen?

Comment by Mikeonline2821 on March 30, 2012 at 9:40am
Randy. Awesome idea maybe for the time being I can come up with something like that for local hospitals to use. Hmmmm... not sure how to start but I didn't know anything about my current job 12 years ago either. Good to know you have a great doctor even if he has some shortcommings. Good to see you on TuD to fill in the holes.


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