Thank you for sharing your situation and the horror you have been thru.
I am 64 year old goat who was diagnosed in 1970's on a glucose test - useless in my mind and BG was 160 - . Then they did not have pre diabetes etc.
1989 - was diagnosed as BG had gotten over 300. Was put on traditional pills - sulfa - somethings.
In any event, could not get rational meter readings - all over place and I tried in dumb way - drop all candy, sugar, cookies etc, Back then only internet was universities and military and no neat web sites of today.
Later in December 2007 - had stroke , knocked out of job, and found I could not get BG under 185, wake up in morning at 238. Kidneys dropping, protein in Urine, body full of water, up to 330 pounds, on 1200 calorie diet and could not lose an ounce.
Eyes had the hemorages, lungs weak My Doctor was special and told me he had two choices - put me in intensive care ( this was after stroke healed) or send me to indiviual tests and I could work from home.
As an old electronice engineer, not medical man, nor cure chasing, I remeber that I had the handheld meters and remembered one thing - extreme exercise would cause BG to drop.
Doctor did his tests, I held on 1200 calorie diet and started walking 1/4 miles loop to see how many it took to get BG back down. 1.5 miles BG started to budge and by 2 miles - headed back down to 140 and lower.
Soon I was walking 2 miles each and every day to get BG back down . Then ran finger stick machine and stayed up through wee hours and caught the dam BG starting at 100 at midnight and by am up to 238.
Nobody had answer to what was going on here.
One day, I fell asllep early at night and took my dinner metformin at midnight. First time in am I ever saw BG dropped to 180 at wakeup. That riot led to my Doctor putting met on at 10:00 pm and 12:00am midnight and shutting down dawn effect so that midnight numbers looked like morning am numbers at 5:30 am.
SIngle large dose of mnet useless and it is simply the charge up to strength in blood stream. 1/2 life met and residual met useless and no effect.
Why liver - under today's knowledge, source of BG sugar is gut/intestine, liver (75 %) and kidneys 25%. Skeletal muscles while store more glucose than liver, they are one way feed and cannot send glucose back to blood stream.
After years of oversugaring your body, after starting tighter diet - 1200 calories or one that is 20% lower in calories than that to maintain weight, it can take up to 6 months to get excess out of body burned off. Key is to get the glucose storage locations downloaded so that there is always room to store some more. Regulation of Body Bloodstream BG requires there always bee room to store excess gut/intestine glucose and keep BG regulated.
It took 6 months to see my body do a low glucose liver liver add when blood BG dropped below 70. It works fine now but in past, there was so much glucose lying around, brain and liver did not panic.
Warning note: once one gets the glucose generation/liver overroducrion stopped, at some point body may decide to use its own insulin and if you are on the traditional fix - add insulin - starlex/glyburide et all, one may get a whole bunch of hyperglycemic lows and need to strip excess insulin. I was on CGMS and could catch and control.
Fingerstick is dangerous here.
I am not promoting any cures, nor suggest you do anything without the full review and approval of your Doctor, healthcare professional responsible for your cure.
AFter 26 years on wrong cure, I am fed up with the mistaken orthodoxies, promoters and others peddling type 1 solutions to type 2 diabetics where the far more important question is why the Insulin resistance and excess insulin in the BG system.
Cell physiology clearly has some interesting theories and descriptions well beyond why "just - add more insulin or crowbar with avandia/actos" is not best approach.
Today, I am off the excess insulin, dropped the actos and my eyes are now clean, my kidneys stabalized, lungs better, dropped weight from 330 lbs to 250 and still dropping.
It is now time for real science and scientific debugging methods and stop all the crap, divening rods, order of Merlin and horse and buggy horsewhip cures possibly revelent for older times now causing real harm today,.
special thanks for your excellent blogs and comments.
After 4 years dogging this mess; I would offer:
On finger stick machine, catching nasty dawn effect is straight forward - check BG during midnight hours from midnight to 8:00 am
1:00 am 110; 3:00am - 150 and 6:00 to 8:00 am - 238.
Assuing no late nite big snacks, no snacks eaten after 6:00 to 7:00 pm dinner and 100 or so at midnight.
Then using CGMS watch readings when no metformin up to strength in blood stream. and :
as long as gut done, BG keps climbing slowly. Go walk 1/2 mile and if drops while walking, but after resting starts crawling up - liver being butt.
For me standard met tales 2.5 hours up tpo strengh; each time met up to strength. BG levels off and starts down. Regular, predictable and constant.
Have to be sure gut empty or readings from digestion will confuse.
This has been 4 years crawling thru hell and getting bg doem from 13.3 to 6.9 and 6.4..
Best wishes and thank you kindly for all your posts.
This is why single large dose of met useless
I take 500 mg doses of standard met 10:00 pm and 12:00am midnight and a dose
at 6:10 am; 11:00am and 4:00 pm as well. One hour before meals to stop liver dumps from random unwarranted dumps as BG falls back after digestion.
If BG keeps climbing when it shouldn't, your liver is being a butt.
THANX FOR YOUR KIND RESPONSE TO MY BLOG. I'M INTERESTED IN THAT STORY YOU HAD ABOUT SOMEBODY WHO PLANNED A TRIP TO ITALY AND ENDED UP IN THE NETHERLANDS. I'M GUESSING THAT IT IS DIABETES RELATED. IF IT'S A LONG STORY THAT YOU'D RATHER NOT POST IN THE GENERAL BLOG, PLEASE FEEL FREE TO POST IT AS A COMMENT ON MY "PUBBINS" BLOG.
Thanks for your comment Natalie. Have you tried developing a partnership with the professional community? What do you think are ways to develop trust between diabetics and health professionals? What barriers do you see in this, and what opportunities do you see?
I recently went to a diabetes support group lead by 'professionals' and felt a stern attitude of that the professionals know whats best for diabetics. I did not feel listened to, and realized that the emotional support at these groups is really vital. I also attended another one where there was one professional, but it was much different and diabetic centered. I felt that the emphasis on that these are support groups for diabetics, for us, and we should be able to decide how they are going to be run. In this group, I felt listened to, our suggestions for the group were seriously taken into consideration, and the knowledge of the lived experience I have as a diabetic was valued, and called upon. For example, someone asked what exactly type one diabetes was, to the diabetes educator. In turn, the diabetes educator responded by turning the question over to me--letting me define what type one diabetes is--in my view. That seemed really important, and it felt so empowering to define what I have been living with for 21 years.
Feel free to share any more about what you are advocating for, I'm interested! ;)
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