Hi I've read some of ur comments and I just wanted to tell u that he will make ie! I took Type 1 at 10 myself and 15 years later I hd my daughter. She took Type 1 at 11. Now I'm 49 and my daughter is 23 (almost 24) We survived. The teens are harder enough but with the D it makes it abit harder.
Thanks for the good advice its so nice to talk to another mom who understands how hard diabetes can be. My daughter has been a real trooper with it all sometimes I think she is stronger than me and she is very open about it with everyone she meets. I am so proud of her she is such a star about it all. I feel so clueless sometimes just when I think I got a handle on her sugars then she will star getting higher or lower numbers and its so stressful. I know you get everything I'm saying which is so nice to have someone to talk to who knows all about diabetes. I guess like you said we just have to give it more time I really hope I will be more confident with it all soon. Thanks again Amy for your good advice and understanding it's been really nice talkin with you speak to ya soon Melissa
Thanks very much for your kind words and support it's nice to actually speak to another mom. I was just wondering when the sadness and depression i feel from my daughters diagnosis will ease she was diagnosed in nov and became very sick very quickly had to call ambulance had no idea what was wrong with her had took her to Er day before and was told she had tosilitis and sent home, next day had to call ambulance then was told she was DKA and was a diabetic then spent a week in hospital in critical care unit It was very traumatic experience and still so scary too think of it now. But after we left the hospital there has been no support whatsoever It was basically heres your stuff and go home. I have alot of anger and frustration still from everything that has gone on and no one I think really understands except people who know about diabetes. So anyways more like my life story then a comment. How is your son jacob doing with the pump is it better than the pen? My daughter Kallista uses the pen and is on novarapid in the day and lantus at night but like you said there are so many other variables that come into play besides the ratios and insulin.So I will stop going on now thanks again Melissa
Still looking for work since this part of South Carolina hasn't caught on to having some decent healthcare. Lots of parents hover over their kids and they don't have a chronic disease so for you to hover isn't really surprising. I would be more surprised if you didn't. Just a thought, but when you have ideas on a new snack or something, maybe share it with the rest of us. We always love to hear of new things to try or something new going on. Best of luck to you and I hope everyone is doing well.
Probably one of the worst things I heard as a kid from docs. and everyone else was "I know how you feel". You sit there and think to yourself about how have you even experienced what I feel. Unfortunately when our blood sugars are out of whack, it's not really us speaking but the nasty sugar coursing through us. Another thing I hated hearing was so and so has this problem which is worse than yours. I don't think there can be any degree set on any disease. They each come with their own packages of symptoms and reactions. Once the blood sugars come down usually the bad moods go away too, but in the mean time, we're just looking for a little support, someone to tell us that we don't have to be perfect all the time and to let us know that we can move on and take better care of ourselves. The best thing I started doing was keeping a journal for my blood sugars and instead of saying crap another high bs, I would physically write underneath hey I caught this good, now I can take care of it.
Hope all is going well in your world. We FINALLY had our first night without a BG over 200 since starting the pump in February. Scary stuff changing basal rates for the night time. Of course now she is waking up higher so I guess it is time to raise the early morning basal rates too! Keeping on my toes, sleep deprived is so much fun! NOT! (: Hope your Easter was good.
I used humalog for many years and then recently switched to apidra. Apidra seems to work better for me, it peaks earlier and has a shorter duration. I use to go hypo a lot more on humalog, especially 2 hours after bolusing. But it's hard to say because I switched to apidra at the same time I started using the dexcom cgm so I may be having less hypos due to the cgm. I've never used
Hi Amy! Thanks, I graduated this past may 2011. Sorry im responding so late, I haven't been on here much lately, been busy looking for a job. I'm doing much better now with controlling BG with each pod change. I bolus with the old pod for a meal and then after eating I change the pod. I put a temp basal increase 20% for 3 hours. This seems to be working well so far! :)
You are very welcome! I'm sorry if my concern came across as snarky too. Engineering is a very good aspiration for someone involved w/ diabetes. Unfortunately, I drifted away from math well, sometime around the time I was diagnosed in 1984!
Sounds like we walk a similar path. My son was diagnosed T-1 on April 15, 2010. We've been on the pump (Animas PING) since October, 2010 so we are coming-up on our two-year D-Day before long. Like yours, mine is 13 years old. Ah, the teen years!
Coping: Well... (snicker)... as you well know, dealing with adolescent diabetes is like trying to fly a plane. At the end of the day, any landing you can walk away from is a good one! Diabetes in teens can humble even the proudest endocrinologist. Being children of a lesser God, we mere mortals just keep on pluggin' away the best we can. And it mostly works!
I'm an engineer by training, so I adapted better than most to the whole paradigm shift post-diagnosis. Once we got trained, we swore we would do this thing mostly by ourselves, and it's been that way ever since. We do all of our own programming. About the only time we speak to a doctor/nurse is during our 3-month scheduled check-ups. Our A1C stays around 5.7 to 6.2, but most of that credit goes to Son who has adapted very well to the whole thing. It's just amazing how well they can adapt when they put their mind to something.
I know *exactly* what you mean when you say non-D's just don't get it. Friends, teachers, administrators, etc all have to be educated. At first it was overwhelming. Now, it's second-nature. We finally made the transition from "Newbie" to "Seasoned Pro", and now we're starting to gather-up some of the locals who are recently diagnosed so they can have someone to call when a screaming session is in order. I've had more than a few frightened phone calls at 2 AM, and I keep reminding myself we were there once too!
Anytime you need someone to talk too, by all means holler. :) And if you ever get down to Texas, be sure to look us up. I'm pretty sure our teenage boys would hit it off and have some BIG fun goofing around here in the country. If your son plays Minecraft, Warcraft, etc, I'd be happy to make the introduction. (Mine is an absolute nut for gaming).
Thanks for the warm welcome! Hope to see you around the boards! :)
Hi Amy, I am sorry that i dodn't reply to you right away, this last 2 weeks has been hell on our family. My girls lost 2 of their swim team coaches in a tragic plane crash, and it has been a very difficult thing for all of us to process, they were very dear to us, and both still very young. Sorry to dump that on you, but i wanted you to know that i wasn' just being anti-social =) ! Being a D parent is tough stuff, and i can't imagine how mush harder it must be when you feel like you doing it on your own without the help of the "experts". it looks like you are getting some sound advice here on tu, and you are clearly a dedicated mom. sometimes we just have to take things one breath at a time!
Thanks! After weathering swine flu in 2009, this was a walk in the park. The real challenge is getting Eric to take the Zofran. It tastes nasty and he isn't big on taking medications anyway. But I found out what works: Mio. You know, that artificial carb-free flavoring they sell for people to put into water? I usually reserve that stuff for times when he wants juice but has high BG, but the flavor is strong enough that a few drops in water will drown out the taste of Zofran dissolved in the water. I can usually get him to drink a small amount of Mio-tainted water with Zofran even when he's not interested in anything else — I think he likes the color, to be honest :)
Sorry I took so long to accept. I have my screen set large enough to see which means I have to go look for my alerts. Just remembered that I hadn't checked for a couple days. Hope everything is going well. I'm off to the retinologist in the morning. I'm happy with the results at this point. We'll see what he says.
Thank you Amy. I share my story when ever I can in the hope it will help in some way. I am particularly concerned for people with D who think they are doing fine by following the official line.. I hope my atypical story will ignite a spark.
You, Amy, are a true hero of diabetes. I can only imagine what it must be like to have a T1 child. I know what I have gone through to understand this condition. I know what I deal with daily to stay healthy. The thought of having to do these things for my child is another kind of overwhelming altogether. The good news for you is the level of knowledge and the technology available today. Children with D have a much better chance of living a life with more normal BG and living a more normal,long and healthy life than ever before. You have my respect and admiration for what you are doing.
Not a problem. I'm more than glad to clarify. As I mentioned I had not seen a doctor for 19 years. The best I can figure is that I had D for at least 5 years prior to my Dx. It may very well have been closer to 10 years. I have been eating a "relatively" low carb and whole foods diet for most of that 10 years (not nearly as LC as I am now though). The best I can guess is that my honeymoon period lasted until about the last year or so. I went down hill very quickly in the 6 months before Dx. I lost about 30 lb in that time. My honeymoon and diet are the only things I can attribute to staying out of the hospital. I really don't have a good answer for how I stayed out of DKA, but glad I did.
I'm heading out right now and won't be back on until tomorrow. If you want more info I am happy to answer. Just won't get back to you until tomorrow morning some time. Have a good evening.
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