HAPPY BIRTHDAY ALICE!! Best Wishes NOW....and for the rest of the year! Have a GREAT "ME" DAY :)
-------------------------------------------------------------------------------------------------- Hey, why don't you come join us in the TuD chat room?
You'll see us at the bottom of the home page.
We have a great time getting to know each other, sharing info and lots of laughs :) It's on right now!
Yes, the wait is horrible ... every April/May I wait for the letter back from TrialNet (you don't want the call - that means positive) ... I'm really hoping Max escapes his brother's fate ... I've had T1 for 25 years now and the worst part of my diabetes is the fact that my eldest Nicholas got it ... he was diagnosed in 2006. I don't know how families that have more then 2 members w/T1 do it .... I had to leave work to help manage Nicholas' diabetes .... it affects your life on all levels imaginable.
Thank you so much for responding...Today is the first day I actually had a chance to sit down and browse this site. It is awesome so far. I only have one child. Olivia age 9, going on 20....lol her b-day is May 30th...can't believe she will be 10 soon. This new diagnosis threw us for a loop....I am a nurse and even I didn't see this coming. The symptoms were so vague.
She did present in DKA however....Anyhow, how are you adjusting with 2 having D? I bet it actually is a little easier so that they have eachother to lean on etc...
I will definately give Olivia your dtr's email addy. Mine is email@example.com and Olivia's is Olivia2001@computermail.net
Thanks so much for sharing and have a great evening...Please keep in touch...
Pam and Olivia...
Interesting that it wasn't as big of an adjustment for Lilly. When Eva was diagnosed, she just took it in stride since it had already happened to Erin. She would ask us when she was going to get shots before her onset. She thought it was just part of getting older. Neither of my girls really remembers the non-D years.
I think your daughters are the same age as my younger daughter, Eva (7). Erin is 9 going on 40. Our family has it a bit "easier" if you can call it that, since we don't have any non-D siblings to take into consideration. With both of them having T1, our family can embrace changes a little more easily. The disease is a little different in each. We caught Eva's onset much earlier so she isn't as insulin-resistant as Erin. Erin was in DKA when she was diagnosed and it took a long time to stabilize her.
Wecome to Tu! When I first joined here, there definitely weren't that many parents with more than 1 T1 kid!
Wow, that does sound busy! I have my girls in a dance/gymnastics class and have 2 nights a week at the Gym, and that wears me out! :) But, they both love it and their confidence and physical strength and ability has really grown, so it's very worth it to me. That's great that they're starting to count carbs, etc. Are they pumping or on MDI?
I know what you mean about being an ambassador for D. I get tired of the silly or crazy things people say to me, but I keep speaking up to help them understand better. I read the book Getting A grip on diabetes (written by teen brothers with Type 1) which is great for teens/kids and the book their mother wrote. It's outdated a bit, but nice to read her ideas and how she managed things. She has a can-do attitude with them and they're done great.
Feel free to PM me any time or to chat on our pages. I don't know many D Mamas, so I love chatting with people online via TuD.
You have your hands full with 4 kids and 2 sets of diabetes to manage! It sounds like you're doing a great job though! :) Thanks for the add. We're going on 4 years with D, my younger daughter was diagnosed at 15 months.
So so true!! We are in the midst of puberty with my younger one, so his numbers are a mess (at least compared to his brother's); yes the frazzled, sleep deprived feeling is definitely a familiar one - it's like having a newborn all over again. Are your girls on a pump? That has made things much easier. As they get older they become much more independent, which helps too. We are currently looking into a dog from the Dogs 4 Diabetics folks, which I think will be an enormous help!
No worries, it is definitely a different experience with 2! No, we only have the 2 kids, no other siblings, and I was adopted so I have no idea about a family history. My husband's side of the family didn't have any T1 til this generation, now it's our 2 plus one of their first cousin's. Their onset of this was identical - huge weight loss, ravenous appetite, thirsty, thirsty, thirsty. My older son said he hid it from us for as long as he could - he knew he had it and just couldn't deal with it.
Yes, we are part of the "lucky" 3% of the T1 population this happens! Not twins, and like your kids, our younger one was diagnosed first (age 10), 11 months later we got the second diagnosis for our older son (age 14).
Oh wow you are pretty close, how fun! Yes, it is so nice to know I'm not alone. At times it sure can feel that way - especially in the middle of the night when I'm just not sure what to do with whatever the situation is with my daughters numbers. Wouldn't a 24hr Type 1 help line be cool? Hummnn...maybe I'm on to something once I'm a little more knowledgable about it myself! HA!
You have two with Type 1? How do you do it? I can't imagine. Interesting that one of your children had the onset at age 6 but not the other until age 9. Does it run in your family history at all? I am surly keeping a close eye on my son for signs, at least if he does have it down the road I'll have a good idea of what's goig on. We don't have any family history with Type 1 so it's all foriegn to our extended family members etc...
Have a great night! I'm going to go sit and watch the news to see what our weather is for tomorrow. It's only 19 here right now. It's chilly!!! ~Alissa
Awww Alice! So very sorry to hear of the second diagnosis. I guess you were aware of all the symptoms and caught it early. How is she/are they doing?
The silver lining...many!
1. You are not overwhelmed with the second dx.
2. There was a time lapse between the diagnoses, thus not as overwhelming.
3. They have each other to support...this is a big big plus.
4. Meal prep made easier
5. There is SO much out there in advanced diabetes technology
6. You have a loving support team here at tudiabetes
Hang in there....and pop in on my page any time!!!
WELCOME TO OUR BIG LOVING & CARING FAMILY ALICE!!!!!!!!!!!!!!!!!!!
Here's a link to help our new member's get to know more "About Us": http://www.tudiabetes.org/notes
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