Sorry to hear of your struggles with hypo unawarenss. It is comforting to know that I am not alone with this issue. I have been using a pump for the last 5 years and I would encourage you to consider using one as well. There is a lot of training that can be done with the pump and with the new continuous glucose monitors as well but the info can be very helpful in daily life.
It took basically two years and the use of lawyers to get my disability claim. I used the services of a national firm, Binder & Binder, but I'm sure a local disability lawyer office would work as well. Also, I have a great endocronologist who agreed to support my claim. The downside is the cost of the attorney's but if you are awarded a retroactive amount, it just from that settlement. I was not working, so that probably helped, too. We had great support from family & friends, one individual made our mortgage payments for a year.
I also started writing letters to my Congressman & Senators but I'm not sure how much influence they really gave to the effort.
Good luck with your claim.
Hi rich my name is mary ann and I am a type 1 for 31 years on 5 shots daily lantus and humalog insulin have a question for you? I see that you got disability because of hypoglycemia unawareness how did you do that? I applied twice and got denied I habe severe hypoflycemia unawateness and I have a home daycare business but it keep getting hardere because of this problem can you let me knwow how you got it how lng it took ect? I need advice! thanks mary ann
Really! Funny- I see you are originally from Sumas. My husband's family had a dairy farm between Lynden and Sumas on the Halverstick Rd. It burned down almost 20 years ago. When we were married we lived in Everson on the new dairy and then moved to NW Iowa to work on a larger dairy...Now we just built a dairy with his Uncles here...so I guess we are here to stay - but I miss WA! ( : We will be back at the end of the month for a family wedding...
I was diagnosed as a Type 1 in 1978 at age 24 when I first started at school. We lived in NW Iowa for four years while my wife and I finished school. I see your from Denison originally. We were at Dordt College in Sioux Center from 1978-82. We moved back to WA and have lived here since. Our daughter was born in Sioux Falls when I was a senior. She has since graduated from college and is now in Hastings, NE at Hastings College. We have been back to her several times, it is good to be in the Midwest occasionally.
Rich, I just joined this site. I did a search on "DCCT" and you were the only one who came up as to having actually participated. Which site? I started out in 1986 at the International Diabetes Center in St. Louis Park, MN, transferred to the Washington University/BJC site in St. Louis, MO (1986-1988); Northwestern, Chicago, IL, (1988-1989); back to St. Louis, 1989-1993. I've continued in the EDIC from 1993 to the present, flying back to St. Louis once a year from Laramie/Denver. Have you continued also?
Hi Dee, I like my Animas. I was using a MiniMed Paradigm previously but after the warranty ended, I started having software problems with it. I saw the Animas at a Diabetes Expo and when I needed to replace my Paradigm, Animas had a pump sent to me the next day!! Great service. This next generation of pumps are good. I appreciate the ability to "fine tune" the settings, being able to know how much insulin is on board, the ability to upload specific foods that I eat. I noticed right away that was using less insulin, so that has helped reduce lows.
I notice you mentioned Windsor. One of my sisters lives in Kitchener. She is also a Type 1 but she hasn't switched to a pump yet. I'll be seeing her in a few weeks, so I'll try to keep encouraging her to do so. After using needles for twenty-five years, I like not having to find a secluded/private spot just to give insulin.
Good luck with your pump.
Hi Rich!! How do you like your Animas 2020?I have one but haven't done my training yet.So far I find them to be a pretty reputable company.In Windsor,a 13 y/o boy who goes to hockey practice got his stolen.The kids thought it was a video game.Duh!The company replaced his pump even though it was against company policy.What better support can a person ask for?
I started using the 2020 in June 2007. Previously I was using a MiniMed 512 and before that multiple shots since 1978 when I was first diagnosed. I just got the ezManager software a few weeks ago. I haven't had a chance to do much with it yet as I am still learning. From what I have done so far, I find the info will be veery interesting and helplful. My medical team hasn't really been interested in the info that I have given them, yet.
I really like the 2020 because of the ability to see how much insulin is on board. I stopped working several years ago because I was having too many lows, to the point of having medics respond at work weekly and at home. That was shortly after I started using the MiniMed.
I also use the Animas2020 pump. How do you like it? Have you used the ezManager Software to download information stored in the pump. Are the reports useful? Does your Medical Care team use the reports? Drop a line when you have a chance. Thanks.
Florian (T1, 40 years)
If you follow the diabetes online community, you know that #MedicareCoverCGM is a big deal. We have continued to raise awareness on #MedicareCoverCGM because we believe that ALL people living with diabetes should have access to continuous glucose monitors (CGM). With Read on! →
A few years ago, we at Diabetes Hands Foundation reached out to the members on TuDiabetes and asked them to share their perspective of life with diabetes through one of the five senses, as part of an initiative called Read on! →