Hi, Rhonda, Thanks for your note. Yes, I look forward to getting to know you all and supporting one another. I'm also eager for Elisabeth to see other kids who have diabetes. We looked at your pictures together and I showed her that your daughter also has diabetes, look at her needles, etc. We don't know any other kids with Diabetes, so I've been buying story books for her that deal with diabetes and she enjoys that. We've been on the pump for 1.5 years now, so let me know if you have questions. Take care!
Hi, Rhonda, I wanted to say hello. We live in the NYC area and my little girl with diabetes is 3 also. Elisabeth also has an older sister...I'd be interested to email with you sometime. Take care, Jessica
We just started Alexa on the pump this past Wednesday. We were having tons of lows - we'd have high's, too. It was all really unpredictable. She was diagnosed in Oct 2006. Last year I was not considering the pump, but here we are. I was, for a while opposed to it, because I was mis-informed. We see a pediatric endo in Atlanta that is amoung the top endo's in the country. Well, when she was diagnosed, and we asked about the pump, the endo said, "that should be a decision she should make when she gets older." So, I figured she wasn't that excited about the idea, so I convinced myself that we were giving her the best treatment we could with shots. I never felt like it was an issue, Alexa took the shots like a champ, and her BG's I was told were typical of a diabetic her age, etc. I was told that the fluctuations were normal, etc. She was all over the board. Well, Alexa had a seizure in March (from severe hypoglycemia) and from that point on, her BG's were truly a nightmare. In 4 months, I had at least a dozen times in which we struggled to keep her conscious. I started doing some research on continuous glucose monitoring, etc, and got into a bunch of info on pumps, and message board were people were having the same issue, and the pump was a "life saver." So, when we went to the endo in July, I said we were extremely interested in a pump, and added that Alexa was extremely interested. Well, it was weird, the endo was just fine with it. So, I was very confused, and honestly, it bothered me that in two years, it was never mentioned to us by the endo (the endo nurse suggested it to us twice, actually). There wasn't even ever a time when they said - "you may one day want to go to pump therapy" or "the pump is really a great thing that you may want to eventually consider." Well, anyway, in less than a week, I am already seeing improvements. It would take me an hour to type all the things we've been through. But I have not once had to feed her in the middle of the night in the past 6 days, which was almost a nightly occurence. She didn't just have lows, but a bunch of highs. In fact, her A1C when up to 9.7 in the 4 months or so that we were having so many lows. She has felt better and has more energy, and her blood sugars are fairly consistant - so far. I don't know what the future holds, but now it's pretty sweet. It's a much easier tool to deal with for schools, too, I believe. Alexa goes to private school, where there is no nurse, so I have to train every one on what to do, and it's just so much easier, and not quite so scary for people to deal with than shots. I wish I had done it much sooner than this.
will you please tell me about quilt for life evening,just to get ideas for charity to apply over here.
I am trying to arrange an evening for peots to read their poetry and tickets money go to charities supporting diabetics.
How is Olivia?
Hello thanks for welcoming me as a friend. I think i'm going to learn alot here. I noticed Olivia's A1C is really good please give me some advice and how you feed here and do you get alot of lows. Thanks ..Mother of Tyrese
Yeah, seeing them all laid out still just kills me. We get "used" to things then, we have to empty that container, and for me it is like day one again. They are so brave. I just hope we can get this cured and they can be kids without worries! Hope you are having a good day.
If you follow the diabetes online community, you know that #MedicareCoverCGM is a big deal. We have continued to raise awareness on #MedicareCoverCGM because we believe that ALL people living with diabetes should have access to continuous glucose monitors (CGM). With Read on! →
A few years ago, we at Diabetes Hands Foundation reached out to the members on TuDiabetes and asked them to share their perspective of life with diabetes through one of the five senses, as part of an initiative called Read on! →