Manny, so glad you're out of the hospital! Hope you're getting stronger every day. make sure you you don't overdo it, or your "big sister" will have to come out there and inflict some discipline, lol. love and hugs
Hey Manny, great article on dLife! @rpederse sent it to me today.
I don't know if you know much about my story, but I was diagnosed with Type 2 in June 2009 and really struggled. The oral meds, diet and exercise worked for about 2-3 months and then I couldn't get below my BG down below 250 no matter what I did. One night worked out for 4 hours trying to get my BG down and it ended up rising to over 400!
I am SO grateful for my friends in the DOC for saving my life. They had gotten to know me and what I was going thru and had taught me about LADA. I was trying to get with an Endo, but there were 4 mos. waiting periods. A friend on twitter was able to get me in with his diabetes clinic and I was quickly diagnosed with LADA. I went on insulin right away and saw a remarkable difference immediately! I have now been on a pump for a month or so and I can't believe the difference it has made in my life!
Thanks for sharing your story. It helps the rest of us out here feel that we're not alone. You've really done a great job in bringing people together and encouraging a spirit of community.
Hi Manny, I'm on your Tu Diabetes site too, but this is in reference to the dLife subject, LADA. When I was first diagnosed with Chronic Kidney Disease, the doc put me in touch with a trial-study clinic that was testing a new medication for CKD (there IS no medication presently). I went through a vigorous testing, and one os the main issues was if I had T1 or T2 diabetes. I was 31 when diagnosed but went on insulin immediately. That was 37 years ago, and this is the first time I have heard the term LADA. It's rather confusing and mind-boggling!!
By the way, I was turned down because my heart rate is too slow!!!
Manny, here's another resource for the uninsured: Eye Care America. They help you get a free eye exam if you have Diabetes, and no insurance, or a history of glaucoma, etc. I qualified, and they're going to get me in touch with a volunteer ophthalmologist in my area, and it's free of charge. :)
Hey Manny? I just participated in Debra Lautenbach's survey about online communities. I learned about it here. I wanted to go back to that post and reply so that others would participate. I wanted to encourage the more intrepid members here to talk to her, since she's got a good perspective of those who are very active. Can you direct me back to that post? I tried searching, but I can't find it, and I'm too lazy to search anymore! :-) Hope all is well with you!
Quisiera saber que va a pasar con esta red social, que aunque no participo mucho, me ha servido para seguir aprendiendo sobre diabetes y pracgticar mi inglés.
Te dejo la noticia que acabo de leer en la entrada de ning: http://blog.ning.com/2010/04/an-update-from-ning.html
Raulillo desde Tijuana
I know I'm new to this site, but already I can tell you that I've enjoyed it immensely and have had the opportunity to learn a great deal from members. Today I was at one of my doc's at Mass General Hosp in Boston and I was saying how productive, positive and active the site is. I work in higher ed (university) and have not seen many sites nearly as effective.
However....and I'm sorry to feel compelled to write this, but a recent discussion involving someone named Lizmari just "ended" (her action) after countless hours and messages, many of which were of the highly emotional, roller coaster type messages exchanged between Ms. Lizmari and others. It involved her claim of a "misdiagnosis" by her doctor from a few years ago.
Anyway, many members tried to be helpful in their comments; a couple were less gentle than others, but once you post something publicly, I think you have to be willing to listen to all kinds of responses. None, I felt, were out of line.
But my question is this: is this site considered moderated? If so, at what point should the initial author have been told to "cool it" a bit? As far as I can tell, the site is not meant to he a group (or individual) therapy environment. Personally, I have my own assessment of Lizmari and I believe some might say she is diagnosable. Be that as it may. At what point is the discussion stopped? Is it fair that she decides to lash out at someone trying to be helpful and then end the discussion? I hardly think that is reasonable.
I'm sorry I don't know what the answer to this is, but I deliberately watched the exchanges over the last two days, and even made two comments of my own. I could have predicted it would end like this....a temper tantrum and storming off like a young child. Does this happen often?
Just curious if there are ever any repercussions from situations like this.
I look forward to hearing your response to my concerns.
I have type 1, and after my son was also diagnosed with type 1, I wondered whether there was anything I could do to reduce the risk of my 2nd child developing this disease. I've made a website summarizing the current scientific research on the environmental factors that may increase (or decrease) the risk of type 1. I ended up focusing on environmental contaminants, since these links are not well known. Perhaps you can help get the word out! You might include it on your list of "other websites" for example.
Some toxins have been found to affect the cells that produce insulin in the lab. Some toxins have been found to initiate or worsen autoimmunity.
There is growing evidence that environmental contaminants may also contribute to the development of type 2 diabetes, and this evidence is included on the website as well. A provocative study of U.S. residents found that people who were obese but had very low levels of contaminants in their bodies did not have increased rates of diabetes. Only in people with certain levels of contaminants was obesity associated with diabetes. Not only that, but exposure to some contaminants may also lead to weight gain. In other words, obesity alone may not be the whole story. We may need to rethink our preconceptions about diabetes altogether.
Do environmental contaminants contribute to the rising incidence of both type 1 and type 2 diabetes? Can preventing pollution also prevent diabetes?
I did receive your request to fill out the survey and make the donation to Tu, not a problem , but for some reason the link that you send me to take the survey does not go through, Im still getting the hang of the computer thing , so can you work me through it.. thanks
So you have heard of Giving Tuesday, right? Maybe you have seen the hashtag: #GivingTuesday. If you are like me, confused by all of the messages pointing in different directions floating around social media, you may be wondering, “What is Read on! →
Last Thursday was November 14, 2013, the day we commemorated the birthday of Frederick Banting. Thanks to him we have insulin today. Early that day the International Diabetes Federation released updated statistics for diabetes worldwide, as part of their update Read on! →