Hiya Manny, thanks for the welcome. You could include Ireland in the UK group, though I'm guessing most Irish people would want a group of their own - I'm happy either way! I'm looking forward to chatting to you all and learning more about managing my illness. Siepie
Thanks for the compliment on my page, it was fun to do. I just messed around with the configurator until it came out all sparkly and stuff :) Not sure I could dupicate it if I tried...lol. Thanks agin for creating this space to come together, it really feels good to be proud and connected when it comes to diabetes.
About me and about Dex- a little history - this might get long.
I was a 6-8 time a day tester...and that really didnt bother me so much...my fingers are calloused over from a life time of finger pokes...diagnosed at age 4--and the inconvience of it that i felt when i was 10 is no longer present. Facts are, I am smart and know too many diabetics in their 30's that have serious complications - kidney transplants, sever retinopathy, neuropathy. Thanks to my parents, I am complication free after 33 years of diabetes. They taught me well and didnt ever let diabetes hold me back. They worked like hell in the late 80's get get me the latest and greatest insulin therapy - the minimed 504 insulin pump. Pumps have evolved and i am on my 4th or 5th one now.
Although complication free, i do have a bit(alot) of hyper and hypoglycemic unawareness...especially at night. Waking up at 30 is not good...and neither is getting home from Target at 450. When awake my symptoms for high feel much like symptoms for low.
in the last year my A1c's have been 7.3 - twice and 6.6(i really buckled down after 2 --7.3's. But i had lots of swings and also have the common problem of over correcting for a nighttime low...getting out the fruit loops and eating until i knew i was not low...then waking up 2 hours later at 500. blah.
My decision to go with a CGM came in stages...i first met someone that had the Guardian and she was not impressed...then that girl switched to the Dexcom and loved it. Then I had another diabetic friend that got the MM pup/ CGM and she loved it and let me try it out for a week. I was totally sold. Since my pump still has 2 years left in warranty, the Minimed medtronic - was not an option...so i researched a ton on the Guardian and the Dexcom. Both have pluses and minus', but doesnt everythign in life? This is what i have found so far - long story short - its all about trending...since the CGM's have a bit of a lag 15-20 minutes compared to actual metered BS readings - the trending is what counts. When running level BS on Dex i found that accuracy was pretty good - on Dex either right on or within 20 points...on the rise or on the fall is where you really cant rely completely on the reading from the CGM - but the trending is great. so when you see your graph falling from 130 to 90 in 30 minutes...chances are you need to bring on the fruit snacks(my latest craze in treating lows - having 2 boys under 7 years old makes these real convienent - and it is just the right amount of carbs for me)
i wrote up a little comparison a week or so ago from Bernard - the post right before this one...i met him thru the yahoo group diabetescgms - he is also a Dex user. Lots of good tips on there too and insurance info to get these things paid for - I am still working on that...but know that my insurance carrier has paid for the MM CGM - (Aetna) so i am hopeful.
i have gotten 13 days out of a Dex Sensor - which is fantastic...i generally get 10 out of my pump insets - but i am very insulin sensitve and only take about 18 units a day...i hear that helps with irritation in the inset area.
1. MM - Day 7 the tape was very itchy and it had to come out…the readings were still good but I just couldn’t take it anymore. The dangling minilink seemed to cause issue for me – and from what I have read on the yahoo group, it does the same for many…all the talk about what kind of tape to buy…I am so thankful I don’t have to use extra tape with Dex.
2. The MM software (website download) was great…at least from my limited experience.
3. I don’t think the accuracy of MM was as good as Dex – and it was very much stressed to me not to calibrate unless I was running level BS. Absolutely no more than 4 calibrations a day on MM. On the MM I was often off by more than 50 points even when I was running level. Of course, this was one sensor, one week.
4. MM pump being built in was a big bonus but obvious – no worries of misplacing the receiver or the 5 ft range issue. BUT, any weak signals blanked out the graphs altogether…and I got a lot of weak signals with MM…so if I hadn’t looked in a while, I would have no idea…at least Dex keeps the graph visible so you know where you were 30 minutes ago.
5. The MM did let you scroll thru every reading for the last hour…and on the 24 hr screen it would show every 30 minutes readings…I wish the Dex would do that…and have a 24 hour screen... Dex has 1, 3 and 9 hr trends. I don’t see the benefit of 9 hours over 24.
6. Dex cable – you have to have a cable to hook up your one touch ultra(they sent a free one with the DEX) for calibration - and it is so L-O-N-G – it makes no sense to me at all…that cable could be 3-5 inches---that would be great because you could then squeeze it into the One Touch meter pocket.
7. Dex is not currently waterproof--but the upgrade is coming this summer - my rep said if you buy now, the upgrade and software will be free.
I paid 450 for the starter kit and 175 for 5 sensors...
my goal is to never got over 250 again...(i know i will be i like to think big) - with the Dex i have gone a week and stayed under 250 - not bad...previously i woudl hit 300 about twice a week---on a good week.
hope that is not too much --i love this thing and do like to talk about it.
You posted somewhere else that you're taking Vytorin for your lipids. I was put on Lipitor a few years ago as my cholesterol crept up and the ADA kept bringing the numbers down.
I didn't like the idea of taking another drug for something where I was only slightly above the levels. When my first results came in my level had gone from about 200 to about 130 - whoa!
So I switched from 10mg Lipitor every day to 5mg of Lipitor every other day (made this decision myself). My level drifted up to about 160. And that's just fine with me. I figure my body is not dealing with as much of another med. Works for me.
Hey sorry, I didnt see the rest of the message you wrote. We went hiking in Big Cottonwood Canyon, which is about 15 min from where I live. I changed the picture though, because I didnt really want to keep that one up. I love your pic by the way. Thanks for the message.
Yeah, I'm in NJ. I haven't had much access to the internet, but I hope to start blogging again soon. right now I'm just communicating directly with people who email me because I'm trying to figure how to fix my blog because I somehow disconnected it from updating! Yikes. Anyway, I'm moving it to a new blog, so once I figure *that* out, everything will be better. :-) TTYL!
thanks so much for the heads-up about the mistake in my blog address manny!! im heading over to check out your blog right now.
yeah, the taking a break from the pump (and the period in which it wasn't working and my blood sugars were crazy unpredictable) has sucked. being without it, i REALLY REALLY appreciate and love it when it works right. in a way i never had realized before in the 6 years of pumping.
all i can say is... be meticulous about rotating your sites! and try your legs/hips... it works for most people just not me, my body is freakish
im giving the pump a try again now, we'll see how it goes
Above is a photo of Diabetes Hands Foundation’s own Manny Hernandez with the stars of the Diabetes Co-Stars Video, “Strength in Numbers.” In case you haven’t heard the news yet, there is a new video making it’s way through the … Continue Reading
The Diabetes Hands Foundation and Diabetes Advocates Program is proud to announce and congratulate the members of DA who were granted scholarships to attend diabetes conferences in 2013! Thanks to a generous grant from Novo Nordisk, in 2013 we were … Continue Reading