Kathy, the blog is just wonderful. I got a little choked up actually. It just made me feel so proud to be a member of this community. I hope you're having a good day, do you go to dialysis on the same days of the week every week? are you by yourself when you get it, I was just wondering. It's my greatest fear too, I want to know what it's like, and then again, I don't.
I know what you mean about the food coloring. those orchids remind me of my "blue" quilt I'm working on now. We are also getting rain and thunder here in NJ. Say, I know you're a movie buff, I'm looking forward to seeing "Water for Elephants" - I read the book last year and could not put it down - have you read it?
oh, I thought it was going to be something like a totally salt-free diet. We've been using a lot of ground turkey lately. I've decided in some things, like tacos and chili, I actually prefer it to beef. 10 oz is a lot, I thought so much protein was a stress on your kidneys. Reed has a place in my heart too. just sent you a pm.
hi Kathy, I forgot to thank you for the video. how are you doing? it sounds like you're managing fairly well from everything I read on the pages here. May I ask what additional food restrictions you've had to take on? just wondering. I can't believe it's April 1st and it's snowing here in northern NJ.
Hi Hon, I am doing fine now. The Laser was brutal...ugh. The Doc didnt wait long enough for the drops to numb and stuck that needle into my eye socket...pain! Then.....during the Laser I could feel way too much, he said I dont numb up well....Ha, need more drugs! So, it was a very painful ordeal. 487 zaps. Came home and rested and then I was a big lazy blob on Friday too :) Feel great today. My Mom was with me on Thurs. in spirit. Thanks hon, and how are you? do you feel ok? Hope you have a nice weekend. Love ya Sister :)
hi Kathy, hope you're having a good day. yum, crabcakes! I know Minneapolis has lots of good food, my husband used to go there once a month from California, and one time I went with him. We are going to a community party tomorrow, so I'll bring the Mexican layer dip and the spinich dip with me. I don't need the carbs or the calories. I'm thinking I need to tighten up my numbers, but I'm not sure where I need to focus. maybe my Monday morning appointment with the endo will help me. just feeling a little discouraged today.
Hi...yes, I too get the long needle injected. That part really dosent bother me, it is when they hit the nerves in the eye with Lasers that just kill me and afterwards I get such pain in my temple. Just want the spidery clots to go away!! Drives me crazy. How are you doing? I hope well. xo
Hi Sister!! I hope you are doing well. I am okay honey....just been a very long and annoying, painful, stressful and scarey time for me and these eyes. The Laser zaps are so intense...hurts like hell. Right eye still has spidery veiny clots, starting to break up but now I have a vaseline like effect as well, over part of my pupil area. Light from above really bothers me and wipes out some of my vision. Another major laser surgery on the 24th....taking drugs beforehand and after this time! LOL How are you doing? I think of you often and wish you nothing but health and happiness, you are a precious person, love you xo Robs
hi Kathy, gosh thanks for the kind words. The unfortunate subset of humanity who've experienced that pain from a tooth are the only ones who can truly relate. After they take it out tomorrow, I'll be without anything there for a year while the area heals for 6 months, and then prepare for an implant. I know those bridges can damage. I hope you're getting along alright.
Hi Kathy- I did try Mirapex but it did not do a whole lot for me. Apparantly I am of the 10% of folks these meds do not do much for. And yes I have heard about the rebound (what they call augmentation). There is a website of a support group in California where they have a doc that deals mainly with people with RLS who will answer questions you can email to him. I found that very helpful. If you are interested I can look it up and send you a link to information. They say about 10% of the population has RLS. I currently take Lyrica for it. It helps in that when I do not take it I have quite severe symptoms. Still it is pretty bad :-(. Unfortunately the only thing that tends to help much (as far as getting sleep) is narcotics. Not something I am terribly fond of but I guess you do NEED sleep. The only hard part of that after you get around your own aversion to narcotics is getting a Doctor who does not think you are an abuser just looking to score. I guess it is a lot like diabetes. Can't be cured but hopefully can be controlled.
Kathy, I just noticed your date of diagnosis. My date was June 21 1974. But I count June 21, because that is the day I got out of the hospital and it is my birthday. how about that we were ill at the same time. Well ill in a manner of speaking I was at Disney world starting on June 6 of that year. That is when I really got ill.
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