Episode 29: Marriage with diabetes

In this episode, we return to the topic of relationships. Highlighting an interview with Chris and Lorraine Stiehl this podcast focuses on marriage with diabetes in the mix. Chris has been living with diabetes for more than 50 years. He and Lorraine have been married for more than 30 of those years. Together they encourage everyone with diabetes to realize they can do and be whatever they want, and share what’s worked for them in their partnership.


Everybody Talks Diabetes Podcast Corinna Cornejo

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Episode 27: Relationships with diabetes

Relationships with diabetes? Or diabetes in relationships? Which is it?

In this episode Corinna and Scott talk about diabetes’ effect on their personal relationships. And we play highlights from a recent interview with Daniele Hargenrader, a.k.a. The Diabetes Dominator, on this topic.

Every personal relationship can feel the effect of diabetes, not just romantic relationships. But also family relationships, work relationships, and social relationships. What are the keys to keeping these relationships healthy and helpful? Listen as we share some ideas.

You can hear the complete interview with Daniele Hargenrader here: http://www.tudiabetes.org/video/diabetes-in-relationships-with-daniele-hargenrader/.

Everybody Talks Diabetes Podcast Corinna Cornejo

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Episode 26: ViaCyte, a functional cure for Type 1 diabetes?

ViaCyte‘s President and CEO Dr. Paul K. Laikind, PhD describes the “stem cell derived islet replacement therapy” they are currently taking through clinical trials. In this episode of Everybody Talks Corinna Cornejo and Scott Johnson talk about the excitement surrounding what’s being characterized as a “functional cure” for Type 1 diabetes and asking some serious questions. What’s the tipping point for being willing to undergo stem cell implantation like the procedure ViaCyte is testing? Does this really sound like a cure or is it something else?

ViaCyte is a privately-held regenerative medicine company focused on developing a cell replacement therapy for the treatment of diabetes.  Currently, ViaCyte is conducting a Phase 1/2 clinical trial of the company’s lead VC-01 product candidate in patients with type 1 diabetes who have minimal to no insulin-producing beta cell function. Meanwhile, Vox Pop Films is documenting this process and producing the documentary film The Human Trial.

Everybody Talks Diabetes Podcast Corinna Cornejo

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Episode 24: Afrezza User

If every there was a rock star diabetes drug, Afrezza is it.

In this episode Corinna Cornejo speaks with Emily Coles about how the inhalable insulin Afrezza has captured the imagination of the diabetes patient community and its impact on the diabetes treatment landscape.

We also share highlights from a live interview with Sam Finta, aka AfrezzaUser. Sam spent years being as careful as possible and feeling like “giving up” on his diabetes. Severe depression and anxiety inspired him to seek better means of diabetes treatment. He was fortunate to obtain one of the last openings in MannKind’s Afrezza drug trial in Atlanta through Dr. Bruce Bode of the Atlanta Diabetes Center. Since then, Sam has provided honest, genuine, and truthful information about his experiences with Afrezza via social media ( on Yahoo message Boards, blogspots and others) .

You can find the complete interview with Sam Finta in our archives.

Everybody Talks Diabetes Podcast Corinna Cornejo

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Episode 23: D.I.Y. Pancreas System

Dana Lewis is one of the creators of the DIY Pancreas System, or DIYPS.

In this episode Corinna Cornejo and Mila Ferrer talk about the promise and perils DYIPS represents.

Diagnosed at age 14 with type 1, Dana Lewis had the usual experience of years of frustration of dealing with diabetes devices that did not communicate with each other. She often imagined a system that would take data from each device, run it through the algorithm that every person with diabetes uses in their head dozens (or hundreds) of times a day, and automate some of the decision-making process. In late 2013, this became a reality after someone shared their code to help pull data off of a CGM in real-time. Dana and her now-husband Scott Leibrand used the CGM data to create a decision-assist system they called #DIYPS, the “Do-It-Yourself Pancreas System”.

We share highlights from Emily Cole’s interview with Dana Lewis in this podcast. You can find the complete interview in the TuDiabetes archives..

 

Everybody Talks Diabetes Podcast Corinna Cornejo

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Episode 22: BE AWESOME

Only 8% of people actually achieve their New Year’s Resolutions. Yikes! Here’s how you can be part of the 8%.

In this episode Corinna Cornejo and Sarah Edwards talk about Dr. Jody Stanislaw’s BE AWESOME formula — 9 principles for creating healthy habits that stick in the long run.

Dr. Jody Stanislaw received her doctorate degree in Naturopathic Medicine in 2007 from one of the top holistic medical schools in the country, Bastyr University. She has had Type 1 diabetes herself for 35 years. Ever since her diagnosis at the age of 7, she has wanted to be a model for and help others live a healthy and vibrant life in spite of diabetes….and that is exactly what she does! She has helped people all over the country not only lower their A1c, and focuses on helping patients increase their energy and feel better overall.

Everybody Talks Diabetes Podcast Corinna Cornejo

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Big Blue Test Grantee: Carb DM, reaching underserved populations Northern California

Carb DM will be using the fall 2015 Big Blue Test grant to serve two underserved populations in the Northern California area.  Asian Outreach Day is a program dedicated to the Asian community with type 1 diabetes. The program focuses on balancing type 1 diabetes and Asian cultures. The Asian Outreach Day features personal stories of people living with type 1 diabetes, a research update, understanding the benefits of exercise and type 1 diabetes and carb counting in Asian cuisine. The goal of the program is to help people from Asian cultures have a more open approach to their condition and be willing to self-advocate for themselves and their children. They also hope to help reduce the shame and mental burden of diabetes while increasing the connections among community members so they can build a network of support.

The second program that Carb DM will use the Big Blue Test grant award for will serve the Latino population in their community. Their goal with this program is to reach out to every newly diagnosed Latino family through connections at local hospitals and healthcare clinics.

These two programs are only a small fraction of Carb DM’s overall program offerings. Carb DM’s mission is to build a supportive community that improves the quality of life for people living with type 1 diabetes. They foster connections among people with diabetes, their loved ones, and medical professionals.

Now in their fifth year of operation, Carb DM offers over 80 programs a year to people of all ages and all levels of experience with type 1 diabetes. Carb DM currently serves over 1,000 families in the San Francisco Bay Area through a wide variety of programs that are geared toward people with type 1 diabetes and their caregivers.

Tamar Sofer-Geri, Carb DM Founder and Executive Director

Soon after her daughter’s diagnosis with type 1 diabetes in early 2009, Tamar Sofer-Geri realized that fellow parents of children with T1D are the true experts on managing the complexities of living with the condition. The more parents she met, talked with, and eventually mentored, the more apparent was the need for face-to-face interactions among parents, children, and families living with T1D in order to normalize their experience, share information, and get peer support. In 2011 Ms. Sofer-Geri founded Carb DM, Inc., a registered non-profit serving families and individuals living with T1D in the San Francisco Bay Area.

Prior to founding Carb DM, Ms. Sofer-Geri worked at Stanford University’s Office of Development and the Stanford Graduate School of Business for the better part of 15 years. Before moving to the US in 1996, Tamar graduated from Tel Aviv University with a degree in Political Science with a focus on Political Communication. She also wrote for The Jerusalem Post, at the time the only English-language daily newspaper in Israel.


Your questions, answered!! #YesSalud interview with Lorena Drago and Marina Chaparro

The #YesSalud bilingual campaign, a collaboration between the Diabetes Hands Foundation online communities and USAGov, aims to raise awareness about diabetes; different types, prevention and how to help loved-ones with diabetes. Every week in November we will be presenting a different theme, with the goal to provide as much information and as many resources to our community as possible.

Throughout the month of November the #YesSalud campaign has encouraged people to ask their diabetes-related questions HERE, or on twitter or facebook using #YesSalud.  We have been collecting these questions, and this live-streamed event will focus on discussing and answering them!!  Join us on December 3rd to learn what others have asked and how our experts, Lorena and Marina answer your questions.

Lorena Drago, MS, RD, CDN, CDE, is a registered dietitian, consultant and certified diabetes educator.  Lorena Drago

Lorena specializes in the multicultural aspects of diabetes self-management education and is an expert in developing culturally and ethnically-oriented nutrition and diabetes education materials. She founded, Hispanic Foodways which received the New York City Small Business Award in 2006. She developed the Nutriportion™ Measuring Cups that has the calorie and carbohydrate amounts of common foods embossed on each cup and the Nutriportion™ Hispanic Food Cards that have pictures and nutrition composition of common Hispanic foods.

Lorena served on the American Association of Diabetes Educators board of directors from 2006-2010, Chair for Latinos and Hispanics in Dietetics and Nutrition. She was Past President of the Metropolitan New York Association of Diabetes Educators in 2004. Lorena won the Diabetic Living People’s Choice Award in 2012.

She is the author of the book Beyond Rice and Beans: The Caribbean Guide to Eating Well with Diabetes published by the American Diabetes Association. She is a contributing author and co-editor of the book Cultural Food Practices and Diabetes, published by the Academy of Nutrition and Dietetics and print communications chair for the Diabetes Care and Education Specialty Practice Group of the Academy of Nutrition and Dietetics. Lorena’s new publication, The 15-Minute Consultation Guide will be published in 2016 by the Academy of Nutrition and Dietetics. Lorena has appeared on several national TV shows speaking about diabetes management.

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Marina Chaparro, RDN, CDE, MPH, is a bilingual pediatric and diabetes nutrition expert. She is a certified diabetes educator at Joe DiMaggio Children’s Hospital, where she provides comprehensive diabetes education to children and families and instructs patients on the latest technology advances in diabetes care.

Chaparro is an insulin pump and continuous glucose monitor trainer and is often asked to speak on topics such as childhood obesity, infant nutrition, diabetes and Latino Health issues. She is National Spokesperson for the Academy of Nutrition and Dietetics and has extensive experience providing science-based commentary to major media outlets such as The Huffington Post, Univision Media, Miami Herald and Reuter’s Health. Marina often contributes articles and story ideas to print and online communication channels where she translates nutrition science into practical every-day information for consumers. Chaparro is also the founder of Nutrichicos Children’s Nutrition Center, a bilingual nutrition center specializing in pediatric nutrition that offers individualized nutrition assessments & services in both Spanish and English.

On her blog, www.nutrichicos.com, Chaparro shares reliable, practical and science-driven recommendations to help parents and families meet the nutrition needs of their children. Marina has experience working at top diabetes institutions including Joslin Diabetes Center, Mass General Hospital and Miami Children’s Hospital. She is passionate about diabetes care since her diagnosis with type 1 Diabetes at age 17. Chaparro’s background includes clinical nutrition, public speaking, public health, research and program planning with a focus on Latino health issues. She co-created a successful nutrition and physical activity program for Hispanic adolescents and their mothers, called Healthy Chicas while working in Miami Children’s Hospital. Chaparro earned a specialty certificate in pediatric weight management. Marina is a graduate of Boston University and earned a master’s degree in public health from Florida International University.


Episode 20: Words Matter in Diabetes

In this episode Corinna Cornejo and guest co-host Stephen Shaul (you may know his blog happy-medium.net or his Diabetes by the Numbers podcast) discuss how the words we use have an impact on the lives of people living with diabetes.

Emily Coles interviewed Jane K. Dickinson, a nurse and Certified Diabetes Educator, who has been living with type 1 diabetes for 40 years. In 1993 Jane gave her first talk on the importance of considering language when working with people who have diabetes, and she has been interested in the impact that words have on our diabetes experiences ever since. Jane oversees the (online) Master of Science in Diabetes Education and Management Program at Teachers College Columbia University (www.tc.edu/diabetes) and incorporates discussions on using patient-centered and strengths-based language into each of the courses she teaches. Jane also provides diabetes education to patients, families, and health care professionals in northwest Colorado.

In March 2015 Jane began researching the effect of words on diabetes. In this live interview Jane will share the results of the focus groups she conducted, including the virtual focus group that was held here on tudiabetes. Jane’s own experience with words and diabetes, as well as her research  findings, have prepared her to work with diabetes professionals and patients alike. Jane’s goal is to help people adopt more empowering words when speaking or writing about diabetes and those who live with it.

Everybody Talks Diabetes Podcast Corinna Cornejo

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Episode 19: Diabetes Distress

In this episode Corinna Cornejo and Sarah Edwards discuss Registered Dietitian Vai Jun Lam’s Master Chat on diabetes distress, how to identify it and respond effectively.

The chronic aspect of diabetes is not an easy pill to swallow.  The magnitude of its effects in an individual’s lifestyle can be both overwhelming and daunting, physically and emotionally.  Diabetes distress is the confluence of anxiety and depression that can result from the challenges of daily diabetes management.  This presentation aims to talk about the relationship between anxiety and diabetes management, as anxiety and stress go hand-in-hand and can potentially affect one’s quality of life.  In fact the combination of anxiety and diabetes can exacerbate symptoms, however signs of anxiety can often be overlooked by many people.  This presentation includes various helpful tips to manage anxiety along with diabetes, as well as ways to recognize anxiety in your own or a loved one’s life.

Based in Hong Kong, Vai Jun Lam (also known as VJ) is a registered dietitian who has worked with patients of multiple backgrounds and conditions.  Her areas of expertise include nutrition support and diabetes management.  After graduating from McGill University in Canada, she worked in a community center that focused on weight management for children.  For the past two years ago, she has been a founding part of a multidisciplinary diabetes care team in Hong Kong where she provides individual and group counseling in English, Mandarin and Cantonese.  Her great interest in diabetes led her to pursue a master’s degree at Teachers College Columbia University.

 

The Master Chat Series is an annual collaboration between TuDiabetes and Teacher’s College Columbia University’s Master of Science in Diabetes Education and Management program.  This 36-credit inter-professional master’s program is offered to clinicians who are currently in or interested in the diabetes field. As part of a course requirement, students present ‘Master Chats’ on a variety of topics they have chosen based on discussions taking place in the TuDiabetes community. Master Chats include a short presentation followed by a Q and A, and are an opportunity not only for TuDiabetes members to learn from students in this program, but also to give feedback to them in an effort to help them be the best care-givers they can be!

Everybody Talks Diabetes Podcast Corinna Cornejo

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T2 Series: Susan Guzman, “Rebranding Diabetes”

1pm PT, 4pm ET, 9pm GMT

What time is this where you are?

Join us HERE at the time and date of the event.

In her last interview on TuDiabetes Susan discussed the shame and blame that people with type 2 diabetes often face, as a result of widespread misunderstanding about what causes this condition, and what it really is.  This week’s discussion will continue that conversation, but move into ideas about how to change the general public concept of type 2 diabetes from one molded by misunderstanding, misinformation and stereotyping into one of compassion, understanding and admiration for the millions of people working hard to thrive with type 2 diabetes.

Susan Guzman, PhD is a clinical psychologist specializing in diabetes. Her clinical and research focus areas include overcoming emotional challenges that interfere with management, family issues, and promoting attitudes that support living well with diabetes, from diagnosis throughout life. Dr. Guzman integrates empathy, acceptance and practical guidance to help people better utilize their strengths in living life with diabetes.

In 2003, Dr. Guzman co-founded the Behavioral Diabetes Institute (BDI), the first non-profit organization devoted to the emotional and behavioral aspects of living with diabetes. At BDI, she has served as the Director of Clinical/Educational Services developing and leading programs for people with diabetes and their families. She developed and led many of BDI’s clinical programs, including “Defeating the Depression/Diabetes Connection” (an intensive, multi-week series), the “Just for Parent’s Program” and “Living Well with Complications” workshop. She also held programs for women with type 1 diabetes, spouses/partners, men with diabetes, and other specialized psycho-educational programs for those with diabetes.

Dr. Guzman received her PhD in Clinical Psychology with an emphasis in health psychology from the California School of Professional Psychology, San Diego in 1998. She specialized in diabetes following the completion of her post-doctoral fellowship at Scripps Mercy Hospital in San Diego where she served as the psychological liaison to Scripps Health’s Diabetes Advisory Committee.


Episode 15: The Who, Why, and How of Diabetes Hands Foundation

The staff of Diabetes Hands Foundation describe how they each came to call the non-profit their home, why they love the programs the organization runs, and how your support makes it all possible.

Featuring Corinna Cornejo, Emily Coles, Sarah Edwards, and Melissa Lee

http://diabeteshandsfoundation.org/donate/


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