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Comment by Sarah Keech on May 4, 2010 at 2:15am
Hopefully some of the people with diabulimia will see this and think about what they are doing to themselves. This is a very well done video. Thank you Manny.
Comment by Liz on June 1, 2008 at 6:29pm
I am new with diabetes 7 months now but I didn't know anything about keytones,I'll really have to check it out, also I didn't know Kyla but my prayers are with her family and friends.
Comment by Manny Hernandez on May 27, 2008 at 9:40pm
I was unaware that ketones could appear even without high sugars. Thanks for pointing this out, Michelle.
Comment by Michelle Curtis on May 27, 2008 at 12:58pm
I am not sure if this was mentioned, but always remember that you can have ketones without high blood sugar! So even if your numbers are good and you are sick, watch for ketones.

Also, when in the hospital (we were just there this weekend) remember to take care of your child or your loved one. Bring your own testing supplies, including ketone strips (either blood or urine or both) so you can watch what is happening. You are your own best advocate. There have been times with Westin in the hospital that I have had to "take over" his care because of ketones. Nurses have to wait for Dr's orders to give insulin but I will wait for no Dr. For instance, this weekend Westin was in the hospital waiting for an EEG after suffering a couple of seizures (non diabetic seizures) and due to the stress of those seizures he has started to produce ketones (glad I checked). His blood sugar was a little elevated but not terribly. I had my purse full of supplies with me so I started checking urine and blood ketones. He was moderate to large on the urine stick but only a .6 on the blood ketone meter. Since it wasn't horribly high I waited for the Dr to give me permission to treat, but trust me, if they had been higher I would have just treated and let the dr know after the fact.

All newly dx'd type 1's need to know that the general medical community doesn't fully understand your disease like you do, or will soon. Any time you go to the hospital, please bring your own meter, strips, lancets, ketone strips, emergency glucose, glucagon, etc. Also take detailed notes and hope to get a dr that is happy to let you or a loved one manage your diabetes care.

Thank you, Manny, for reminding us that DKA is very serious.
Comment by joanne cypher on May 20, 2008 at 8:12am
such a young age sad loss my pryers are with her friends & family
Comment by Curlzzz2002 on May 20, 2008 at 12:44am
Manny,
Kyla's passing has touched me in a way that I didn't expect. I didn't know her. But, as a fellow diabetic, mom, woman, I somehow feel connected to her. She's been on my mind ever since I logged on last night. My prayers have been dedicated to her family and they will continue to be in my thoughts for a long time.

Your kindness and care in your podcast was overwhelming. I'm speechless.

Curlzzz

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From the Diabetes Hands Foundation blog...

FDA Docket Extended! We Need You.

If you are new to diabetes advocacy in the traditional sense of the word, you may be thinking, “What the heck is a docket!?” I certainly was the first twenty times I heard it (yes it took that long). For Read on! →

An Open Letter from @AskManny, @DiabetesHF to @NYTRosenthal, @NYTimes

Dear Ms. Rosenthal: I am a person living with type 1 diabetes since the age of 30. I am also the President and co-Founder of the Diabetes Hands Foundation, a nonprofit aimed at connecting and mobilizing the diabetes community. Seeing Read on! →

Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Heather Gabel
(Administrative and Programs Assistant, has type 1)

DHF VOLUNTEERS


Lead Administrator
Bradford (has type 1)

Administrators
Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)

 

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