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Comment by Hunya on September 19, 2013 at 2:08am

Latent Autoimmune Diabetes in Adults is hard to cope with. I am speaking purely for myself. It is an invisible illness – call it a ‘condition’ if you like, but it is an unexpected disruption of your energy system, appearing when society may think you are ‘old enough to know better’. Yet in my experience, diabetologists, who are expert enough to know something about it, may be only prepared to categorize either ‘type 1’ or ‘type 2’. It seems type 1.5 did not exist when they went through their medical training.

And it it not even as though you are looking for an excuse for your volatility. You just want to understand: to recover your reliability and healthy social life.

I am posting this thread partly to avoid irritating people who are happy with their type 1 or type 2 diagosis, but also to ask whether diagnosis is an answer or more of a question.

Well done anybody, who has adapted to living with LADA. Please feel free to let us know how it affects you.

Comment by Peetie on October 18, 2011 at 1:53pm
Well, this is an old video but I decided to share it on Facebook in honour of LADA Awareness Week 2011. Joanne
Comment by Patra Philips on October 24, 2010 at 4:00pm
I was also misdiagnosed as type 2 in the fall of 2003. I didn't know anything about LADA so my "treatment" went on for 5 years before I got a correct diagnosis. I assumed my doctor knew what he was doing and I didn't question my treatment until I wound up in the hospital with sky-high levels and the attending physician suggested I get a C-peptid test... My doctor said I didn't need that test and that I just needed to be more diligent on watching what I ate. I was down to 98 pounds at this point. Granted, I'm only 5'1, but still... I changed doctors finally!
Comment by stacey on October 21, 2009 at 7:22pm
my endocrinologist told me 1.5 is for heavy poeple that does not make insulin cuz type 1 is for skinny poeple and type 2 is heavey poeple so the ones doesnt make insulin are not type 1.5
Comment by Khürt Williams on December 4, 2008 at 10:46am
@Katherine,
Type 1.5 does not really exist. LADA ( Latent Auto-Immune Diabetes in Adults ) is Type 1 diabetes that occurs in adulthood but is often misdiagnosed as Type 2.
Comment by Katherine on October 6, 2008 at 2:36pm
*Stupid question time*

So they (doctors) call it "type 1.5" because of the age at which you're diagnosed? Because you were once a "type 2," using oral medications to control your blood sugars. And now, then, a "type 1," b/c they've discovered that the antibodies are attacking the islet cells, confirming that you need insulin to manage your blood sugars? But instead of calling you a "type 1," they like "1.5," better?

Am I right? roughly?
Comment by Jim on August 12, 2008 at 5:12pm
Thank you Manny, I went through the same issues as you, when I was initially diagnosed in 2001 at the age of 28. I went through a progression of doctors both in Virginia and later in Northern Vermont before they finally figured out that I was not type 2 afterall. Seeing an endocrinologist that will run the appropriate tests in critical. The one that I saw in Virginia would not do it!!

Thank you for all your work with this site. Great job!!
Comment by Kristy on August 1, 2008 at 9:19pm
Great job Manny & Cherise( great article on LADA)!! I would like to see more GP's do at least a C-peptide if after the first 3-6 months of oral meds the patient does not respond with even slightly lower BG numbers. If only I knew then what I know now..
Comment by Sweeter Cherise on August 1, 2008 at 7:02pm
Manny-

Nicely put!!! Good Job Manny.

Cherise

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From the Diabetes Hands Foundation blog...

DHF Partners with HelpAround in an Effort to Connect People Touched by Diabetes

  Leer en español Technology has the amazing ability to ease the stress associated with diabetes; It simply makes our lives a little more bearable. That’s why we are excited to announce DHFs partnership with HelpAround. This new application will help Read on! →

La Diabetes Hands Foundation y HelpAround uniendo las personas tocadas por la diabetes

  Para nuestra comunidad de diabetes la tecnología ha venido a llenar muchos vacíos y a hacer de nuestras vidas un poco mas llevaderas. Eso mismo nos proporciona una nueva aplicación de geo-localización llamada HelpAround (Ayuda a tu alrededor). HA Read on! →

Diabetes Hands Foundation Team

DHF TEAM

Manny Hernandez
(Co-Founder, Editor, has LADA)

Emily Coles
(Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Development Manager, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


DHF VOLUNTEERS


Lead Administrator

Bradford (has type 1)


Administrators

Lorraine (mother of type 1)
Marie B (has type 1)

Brian (bsc) (has type 2)

Gary (has type 2)

David (dns) (type 2)

 

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