I’m sorry you’re faced with this. I don’t have any advice or experience to offer you except the more general findings of the landmark Diabetes Complications and Control Trial (DCCT). This study basically found that better control of blood glucose mattered. It showed that better overall blood glucose control often led to stopping the progression and sometimes even reversing diabetes complications.
How long have you lived with diabetes? What is your regimen to keep blood glucose in check? Do you use a continuous glucose monitor (CGM)?
I completely renewed my effort to rein in my glucose control five years ago when I was diagnosed with gastroparesis, a result of impairment of the vagus nerve, the central nerve system that connects the brain with major organs. My blood sugar control improved a lot. My symptoms have not improved but they’ve also not gotten any worse, something I count as a victory.
I encourage you to consider getting a lot more aggressive with your diabetes habits. I would consider checking your BGs more frequently with fingersticks and/or a CGM. Many people find that cutting down on carbohydrate consumption makes blood sugar control easier. Lots has been written here about this.
You’re at a juncture where you need to decide to defend your quality of life or resign yourself accepting the new status quo or some choice in between. I think sexual health is worth fighting for. Please let us know if we can help.