ive had t1 for a year, diagnosed in my 30s. the honeymoon for the first year was stable and changed every couple of months/sometimes weeks more or less. with eating low-ish carb, exercise and some tweaking every couple of weeks, i was able to keep on top of things.
in the past two months, things have changed weekly, daily, every couple of days. has this happened to anyone else and if so for how long did it last? is this the real diabetes happening now, that it just changes whenever it wants to and ever so quickly or the end of the honeymoon? i know dmmv, its just driving me crazy, have no idea where ill be bg-wise any day of the week. get a1c done nxt week and im gonna be so p***ed off with that stupid number....gaaaah!
Very likely the attacks of the immune system are reducing the beta cells further. This is often described as coming in waves: attack, a small pause will allow the beta cells to regrow, next attack. In this phase the changing amounts of beta cell mass will make it very hard to control the blood glucose. Further the reduction in insulin levels will start to reveal that some changes in you body can not be corrected automatically anymore. The change of seasons for example. But also your 29 day menstrual cycle with its phases of hormonally induced resistance to insulin. At a certain low threshold of production capability these effects will show. Besides of keeping track of your menstrual cycle to identify the pattern there is not much you can do. With the current rate of progression I think that it will take another year to settle.
I suspect our destiny is unchangeable no mater which path we take you where probably detected early and many of us ignored the threat or signs until our high BG overtook us and we where hospitalized. Just do the best you can there are no
set rules, just test, test, test, test, you know what to do....;-)
I was diagnosed T1 about 18 months ago at the age of 50. Like you, I try very hard to stay on top of things and, also like you, am often puzzled by seemingly random changes. I finally gave up on trying to figure out what was going on (dwindling honeymoon?) and just resolved myself to adjust accordingly. Sometimes a reason eventually presents itself but more often the day-to-day fluctuations go unresolved. And, sometimes my A1C is still a pleasant surprise. Nature of the beast, I guess. You're not alone.
thanks for the replies. im now adjusting like you, aimee, every day is an adventure(read:nightmare, haha) with this. im thankful im not so freaked out now thats its happened so much lately. i used to be in tears of anger and frustration with a high number, but now its like, "oh, look at that."
i have noticed though a real problem with potato-booo!!