Seeing how Kerri decided to take the CGM plunge today and how many other members (myself included) have shown an interest in CGM, I just opened a new section in the forum for CGM-related discussions.

Fire away...

Tags: cgm, continuous, dexcom

Views: 517

Reply to This

Replies to This Discussion

Kerri is posting on her Twitter page her experience with the Dexcom today.
Check it out:
I truly hope CGM becomes standard and accepted and paid for by insurance *really* soon. I am not enough of a "model patient" or assertive enough to be a frontrunner in this, but I'm sure going to get one as soon as it's commonplace. And luckily, I don't have hyoglycemic unawareness. My Minimed pump is all set to work with one so...hopefully one day soon. In the meantime, I'll be interested in reading about everyone's experiences.
I'm done with the school year, so one of my goals is to get insurance/Minimed to cover a CGMS for me. It is a necessity! I am an excellent candidate, 30 years of *compliance*, occasional boughts of not-knowin I'm lowin', and getting primed for pregnancy. So far, I've been unsuccessful at lowering my A1C to acceptable baby-making range with my pumpin and feel strongly that CGM will behoove that 'someday-soon' effort. Why I am not allowed this yet? I'm blessed with great insurance (thanks Mikey) and still, I'm supposed to fork over "how much?#@!" out of pocket and punch through numerous stressful hoops to even ... oh, I blather. I need one. Tell me how.
My son got it after 15 lows with seizures.( The endo group failed to dx or suspect another condition; the neuro said he shoiuld have been referred after 1 or 2. They only partially redeemed themselves after giving the rx for the RT Guardian).So we got the new Minimed pump, and the sensors. He does not like the needle on the sensor. It is mich larger, and very hard to insert. He wore it alot, and got a month's worth of numbers, turned it over to the new endo, who never interpreted the numbers to adjust basals etc. They said they had not been trained on it yet. I said they are numbers( 205 a day)!. That is about 200 more numbers than you get on average. Because of his history, Ins is covering it. We also have some good diabetes insurance.
I've used the MInimed sensors/transmitter since April. So far, I've made adjustments with the help of my pump trainer, something my endo knows about. I can upload all the data to the Minimed Carelink website, then my pump trainer can look at the numbers and make suggestions. Minimed customer service (their 1-800-minimed line) has also looked at my data this way to help with a problem of too many"lost trasmitter" situations.

When I see my endo every 3 months, I bring him the graph of where my numbers have been. It easy for him to see how I'm doing. Good luck to you and your son, Kelly.
A friend let me try her CGM which hooked me completely - 2 weeks later I ordered my Dexcom, i have had it 1 months and have gotten 14 days out of each sensor, but notice that i get some really off readings after day 11 - but not bad enough to start a new $35 (soon to be $60) dollar sensor.

Because I am so fantastic, today I am letting another diabetic friend take possession of Dex for a week(or as long as she can get the sensor to read accurately for her).

Although it is first Generation - if this is as good as it gets - it is good enough for me.
I have found a few articles about the Real Time CGMS on Diabetesjournals, but they are quite involved.

I want to print off an article to send with my letter of medical necessity to my insurance company for this device.

Has anyone found a good article about the system explaining its usefulness over our current finger sticking method?

This is what I found, but it seems way to technical somehow, but do I really care?
These studies may seem very technical to you but this is the kind of evidence that will convince insurance companies that this technology is not "experimental" but has scientifically proven benefits. You go girl!!
Hello. I am new here but have juvenile diabetes 25+ years and used pumps for years. I just started using CGM after trying for some time. I do much researching and have excellent endocrine team. The CGM is currently not meant to replace finger sticks. I've used it only 4 or 5 days so far and it is not as accurate. On the other hand, it does alert me when my sugar is getting too high or too low. It's very scary doing things such as driving when all of a sudden you just can't think straight! Right now the GCM is more of an alert system and it also helps you find trends to help get better control. I work as a facility manager in a research facility. They work with dangerous chemicals and I'm the only manager on at night. The biggest help getting my CGM from insurance was the fact that I live alone. I would suggest to do plenty of research. If you work I',m very good at finding the angle needed for insurance if you'd like to mention what you do. Even if it's taking care of children, washing dishes, managing, etc.! I'm not in the medical field, just network, research and alot of personal experience!
Hi Mollie,

I have had the Dexcom since 07. When you start getting the off readings day 11 what you can do is turn it off and let it rest for 12hrs. I usually go overnight and then restart it. I get pretty good readings. My sensors used to last me between 11 and 19days. Usually though 14 was average. I do not get them covered even after a 90+ page appeal with specialty letters and hypo unawareness and so forth. I only wear mine now when I go through huge changes or when I'm sick...
This seems really strange. You let it rest??? I have been finding that my dexcom readings get really inaccurate after a week. It doesn't read highs. It stops around 160's even though my BG could be up in the 300s. Very disappointing.
These are the 2 sample letters Dexcom gives to have your doctor complete - i filled it all out and sent it to my doctor to sign. Just filed - no word on approval or denial yet.




From the Diabetes Hands Foundation blog...

DHF Joins Diabetes Advocacy Alliance

Diabetes Hands Foundation is incredibly honored to join the Diabetes Advocacy Alliance, an organization with the drive and potential to affect a powerful, positive impact on diabetes and healthcare policy. Diabetes Advocacy Alliance is a 20-member coalition of leading professional Read on! →

Helmsley Charitable Trust Renews Support for DHF

HELMSLEY CHARITABLE TRUST GRANTS SUPPORT TO DIABETES HANDS FOUNDATION FOR FOURTH YEAR  Funding in 2015 to support major transitions in programs and leadership at Diabetes Hands Foundation BERKELEY, CA: February 18, 2015 – The Leona M. and Harry B. Helmsley Read on! →

Diabetes Hands Foundation Team


Melissa Lee
(Interim Executive Director, Editor, has type 1)

Manny Hernandez
(Co-Founder, has LADA)

Emily Coles (Head of Communities, has type 1)

Mila Ferrer
(EsTuDiabetes Community Manager, mother of a child with type 1)

Mike Lawson
(Head of Experience, has type 1)

Corinna Cornejo
(Director of Operations and Development, has type 2)

Desiree Johnson  (Administrative and Programs Assistant, has type 1)


Lead Administrator

Brian (bsc) (has type 2)


Lorraine (mother of type 1)
Marie B (has type 1)

DanP (has Type 1)

Gary (has type 2)

David (has type 2)


LIKE us on Facebook

Spread the word


This website is certified by Health On the Net Foundation. Click to verify. This site complies with the HONcode standard for trustworthy health information: verify here.

© 2015   A community of people touched by diabetes, run by the Diabetes Hands Foundation.

Badges  |  Contact Us  |  Terms of Service