Just joined tudiabetes today!! :) I have a 4 year old boy diagnosed in Feb. 2012 with Type 1 diabetes. I'm considering putting him on a pump this summer. Any thoughts on why I should/shouldn't put him on a pump? We're looking at either the Medtronic Paradigm 523 or the Animas One Touch Ping. Any suggestions??? Also, we like to go swimming and boating in the summer a lot, do you foresee many problems with this while using the pump?
hi Mom, welcome to the community! Have you joined this Group yet?
Please do. Our admin Lorraine's son was dx at 4 also, and I'm pretty sure Caleb went on the pump not too far after. glad you've joined us!
Thanks, I just joined the group. I love this website!! :)
I would go with a yes to the MM but other's here may have different opinions on the pumps but PLEASE start pumping as soon as u can it realkly helped me with control.
Yes u do have a bit of trouble with the MM and water. The instrutions are to never get it wet or sumurge it in water don't know about the other though.
Thanks for your help!
Hi Cody's Mom,
Welcome!! My daughter started on an insulin pump at 4 years old (she is now 7) and we absolutely love the pump. Specifically, we like the fact that we can customize the basal insulin. Her Lantus seemed to wear off before 24 hours, and even though we gave her half at night and half in the morning, we had difficulties with high blood sugars in the night. We also liked the fact that we were able to dose small amounts accurately as at times .5 units was too much, but with a syringe it was very difficult to accurately administer less. These are the main two reasons, but there are many others (I swear I do not work for a pump company!).
I was worried that my daughter would have difficulty adjusting to the pump or maybe even try to press buttons on it, but this was never an issue. We did a saline trial before we ordered the pump. This means that they hooked her up to a loaner pump, so we could see how she did wearing it around for a week or so (I can't remember the amount of time). There was no insulin in the pump, so we still had to administer insulin by shot, as usual. If you have concerns about how Cody will do wearing it around, you may want to ask your endo office about a saline trial.
My daughter is on the Minimed Paradigm (522, I think), but I get the feeling that many of the pumps are similar, so I'm sure that the benefits I mentioned earlier are the same on the Ping. Vivian's pump is not to be worn in water (although we have accidentally gotten it very wet several times with no problems). We just unhook for baths and swimming. If she is in the water less than 1.5 hours, we just give her a little extra bolus when she is done and hooked back up (or before if her blood sugar is not too low beforehand). When she swims (which is not really frequent for us) we just hook her back up every 1.5 hours or so to give insulin before she goes back in the water (and re-apply sunscreen at the same time).
If you have any more questions, feel free to ask!! Best of luck.
Thanks, I'm feeling pretty sure I want to pursue getting a pump, now I just have to decide which one!
Short answer: Yes. The pump is not a cure, but it is a much more efficient and precise way of delivering insulin. I'm a T1, use a pump, and love it. If I had a T1 child, I would not hesitate for a second in starting him/her on a pump. I've met quite a few young children over the years who have pumps. A few things to consider regarding the different models:
All in all, if it was my child, I'd probably go with the Revel, primarily because of the slightly smaller size, Carelink software, reliability, and integrated CGM capability.
If you have concerns about your son wearing it (i.e., will he keep it in? Will he withstand site changes?) get hooked up with your local rep and ask them to loan you a pump to use with saline. It's a great way to practice and see if he will tolerate all this.
There is a HUGE learning curve with pumping. Read the book Pumping Insulin NOW. Be familiar with the terminology, how to set/adjust basals, etc. If you're able to get the pump, play with it. A lot. Practice with your son bolusing, setting temp basals, etc.
And remember that pumping is NOT permanent. At any time, you can stop using the pump and switch back to MDI.
Wow! Thanks for all the information!! It was very helpful!
Hi Cody's Mom, welcome to the Tu family! As I always say to the parents here, I admire you guys so much for all that you do for your kids. I'm Type 1 but wasn't diagnosed until I was 27 so I didn't have to deal with all this during those early years. One day Cody is really going to appreciate all that you're doing to keep him healthy.
As far as pumps go, I'm currently on the OmniPod and love it. There are parents on Tu who have small children currently on OmniPod so hopefully they will chime in.
After 25 years, I finally switched from injections to a pump and I wish I had done it long ago. For me, the learning curve with a pump was not as big a deal I think because I already knew the mechanics of carb counting and insulin.
Since Caleb was just diagnosed a few months ago, you may want to make sure you read and learn as much as you can about pumping and insulin activity. Learning the diabetes part and the pumping part all at once creates a bigger learning curve.
I think there are many pros to going to the OmniPod for an adult or a child. With the OmniPod there is no tubing to deal with. That was huge for me. I don't want to have to get used to manipulating tubing when I'm sleeping or under my clothes. The OmniPod helps me feel less like a PWD because I forget that I have it on and don't have to wear anything on my belt - more freedom. I actually will forget where I've placed the pod and have to "pat down" to find it.
I also like the fact that the OmniPod has an auto-insertion and priming process. You put the pod on and push a button on the remote pdm to insert the canula on the pod. It feels just like a rubber band popped you and you're set and ready to go. Super easy. You never see anything that looks like a needle.
With OmniPod, I can bathe or shower or swim and never stop basal delivery because I don't remove anything. I have had no problems with the adhesive on the pods from water; if anything, I have to pull hard to get the pods off.
I haven't had any pods malfunction and when I pull a pod early because of a potential site issue, OmniPod has always replaced those pods for me at no cost.
I would try the different pumps out and choose the one that suits Cody best. I've heard other parents say that they've worn saline filled trial pumps themselves to try out how they feel before they try it on their child so you may want to consider that as an option.
Definitely read and re-read the book Pumping Insulin by John Walsh. It's an easy read and written in an easy to understand manner.
Good luck and please keep posting and asking questions. You will find much love, support and encouragement here. :)
Thanks for all the great information, I appreciate the time you took to help me out!
Heya Cody's Mom, welcome and just to say it, I am so sorry about your little one and you having to deal with T1 diabetes. Pumps look so huge on tiny people it always makes me sad. You sound totally positive and ready to rise to the challenge, though! I know you'll get any amount of help you need here.